April 27, 2018
Dear Friend of the Jerome Lejeune Foundation,
This week I’d like to bring to your attention the stories of two wonderful girls with Down syndrome.
The first is Chloe Kondrich, who, along with her family, has been a fantastic advocate for those with Down syndrome in Pennsylvania. To honor her work, Good Counsel is celebrating her advocacy and achievements at their banquet in New York City – please consider attending!
The other is Grace Rosian, a toddler with Down syndrome who beat cancer twice. Read her inspiring story below.
Thank you for standing alongside us as we continue to advocate for individuals with Down syndrome.
Chloe Kondrich is an inspiration! Chloe and her family worked to pass the Down Syndrome Prenatal Education Act, or “Chloe’s Law,” in the state of Pennsylvania, requiring medical professionals to provide accurate information after a prenatal Down syndrome diagnosis.
Grace Rosian has been a fighter from the beginning; she gets it from her mother. Valerie Rosian gave birth to Grace via emergency C-section, and almost lost her life after going into cardiac arrest. But that was just the beginning of the fight for the Rosians.
The Pennsylvania House passed the Down Syndrome Protection Act last week with bipartisan support 139-56! State Rep. Judy Ward summed it up nicely: “The future has never been brighter for babies born with Down syndrome. We’ve learned too much to accept that Down syndrome citizens should be considered anything less than full members of the community.”
Mr. Daniel Schreck and Mr. Kenny McWilliams joined the board this month. Daniel Shreck expressed his passion for his new position: “I am humbled to be able to serve the mission of the Jerome Lejeune Foundation USA as a board member. People with Down [syndrome], like my little daughter Rose, give what we all need most: love.”