About us

mission of the Jerome Lejeune Foundation USA

While the Jerome Lejeune Foundation in France focuses on Research, Care, and Advocacy, the Jerome Lejeune Foundation USA centers its activities on Care and Advocacy. In March 2021, we launched a medical center pilot program in Denver, Colorado. This first “Pilot” phase is now completed and we have entered the “Assessment” phase of the pilot to determine if and where we should open a permanent medical center in the United States.

“The reality of it is that by caring for the weak, by caring for the most vulnerable, we are made strong. So if we can launch this project caring for the weakest, we are made stronger. If we are made stronger, we can advocate better.”

David G. Lejeune, Co-Founder & President Jerome Lejeune Foundation USA

three core pillars of expertise

Research

#1 funder for research on Down syndrome, committed to therapeutically-oriented…

Care

The Jerome Lejeune Foundation’s primary mission is to provide treatment, handle related health issues…

Advocacy

The Foundation educates, raises awareness and enlightens society about the dignity of life…

All the genetic material is present in that first cell ... and he did so clearly and so distinctly that Dr. Lejeune made me re-think my position on when there is human life and it needs to be respected.
Dr. John Bruchalksi
Dr. John BruchalksiFairfax, VA
My twins enjoy optimum health for Dr. Lejeune's research in FOLATE the protocol ... We are ever grateful for what changed the course of our babies' lives from that FIRST DOSE. in ONE DAY!
Denise L.Anaheim, CA
I met Jerome, many years ago, when he came to Australia. I was then a young student of medicine. I have named my medical practice after him, so inspired was I by Jerome.
John J.Sydney, Australia
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Continuing the legacy of a humble giant

In 1959, Professor Jérôme Lejeune, doctor and researcher, discovered the cause of Down syndrome (trisomy 21).

Since then, the Jérôme Lejeune Foundation, has been working for individuals affected by genetic disorders (Down syndrome, Williams-Beuren syndrome, fragile X syndrome, “cri du chat” syndrome, other trisomies, monosomies and unexplained intellectual disability…).

Serving the most vulnerable and their families, the Jérôme Lejeune Foundation is driven by three objectives: Research, Care, Advocacy.

It implements and supports research programs designed to develop treatments for Down syndrome (trisomy 21) and other intellectual disorders of genetic origin.

The Jerome Lejeune Foundation is France’s number one funder for research in genetic disorders; the Foundation develops and funds scientific research in the United States and many other countries around the world.

We have created and funded the Jerome Lejeune Institute, a care center for specialized medical consultations.

Jérôme Lejeune Foundation is also highly involved in bioethical issues. In a context where ever-accelerating scientific progress and ideological pressure pose fundamental questions for society, the Foundation provides its scientific expertise and answers for difficult ethical questions.

our board of directors
Daniel Schreck
Daniel Schreck
President and Chairman, US Foundation
Kenny McWilliams
Kenny McWilliams
Board Member, US Foundation – Associate General Counsel, Software AG USA, Inc.
Francis (Frank) Kelly
Francis (Frank) Kelly
Co-Founder & Board Member, US Foundation – Managing Director & Global Coordinator Public Affairs, Deutsche Bank.
Thierry de la Villejegu
Thierry de la Villejegu
Board Member, US Foundation – Executive Director, France Foundation.
Jean-Marie Le Mene
Jean-Marie Le Mene
Honorary Chairman, US Foundation – Chairman & President, France Foundation. Son in law of Pr. Jerome Lejeune.
our ambassador & awardees
John T. Bruchalski
John T. Bruchalski
One of Us Award – MD, FACOG
Keenan Kampa
Keenan Kampa
Global Ambassador – Ballet Dancer at Mariinsky Theater
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Healthcare Business Process advisory Board
Louis Brown
Louis Brown
Advisor – Executive Director Christ Medicus Foundation
William Cueto
William Cueto
Advisor – EVP Asset Health, Inc.
David Wilson
David Wilson
Chairman Advisory Board – Co-founder CFM CURO
some of our partners
NIH USA
National Down Syndrome Congress
Global Down Syndrome Foundation
CURO

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