Get Support

List of Services

• Ups for Downs (United Parent Support for Down Syndrome) Our activities are open to all. We are always looking for typical peers, siblings, friends, classmates, neighbors and community members to join us. If you or your child have an interest in one of our activities, but are uncertain if it will be a good fit, give it a try. We welcome everyone and do our best to work with families to meet any exceptional needs and create welcoming communities and interesting age-appropriate activities.
  Social Clubs, Walking clubs, Theatre clubs, Book clubs!
  Open Link Ups for Downs (United Parent Support for Down Syndrome)
• The Down Syndrome Association of the New River Valley We support people with Down Syndrome and their families, and promotes public awareness and acceptance of individuals with Down Syndrome, especially in the New River Valley.
  Open Link The Down Syndrome Association of the New River Valley
• PALS PALS creates inclusive camp (Summer & Holiday) experiences for people with and without Down syndrome. Our volunteer-led programs change attitudes, transform lives, and inspire a world of belonging.
  Open Link PALS
• Yellowstone County’s ‘Extra’ Special Kids (YES Kids) YES Kids is a non-profit organization formed in 2010 and includes parents, family members, friends and professionals working together to improve the quality of life of persons with Down syndrome, as well as other chromosomal disorders.
  Open Link Yellowstone County’s ‘Extra’ Special Kids (YES Kids)
• Down Syndrome Amongst Us We’re here to help you navigate through the special needs world by sorting out and dealing with your needs and the needs of your child. Read more about our mission statement.
  DSAU is published by Sarah Sander, the mother of 29-year-old Moishey who has Down syndrome. Prior to her son’s birth, she had no knowledge or experience in the world of Down syndrome. Contact Sarah, or the DSAU webmaster.
  Jewish Down Syndrome Amongst Us
• Down Syndrome Association of Middle Tennessee DSAMT is a community of parents, grandparents, siblings, physicians, educators, professionals, friends, and self-advocates from 40 counties in Middle Tennessee who celebrate and support individuals with Down Syndrome and their families. DSAMT is inclusive and does not draw stiff boundaries, so if you're in town or you have a need we can help, you're welcome to reach out or join us.
  Open Link Down Syndrome Association of Middle Tennessee
• Down Syndrome Society of Rhode Island DSSRI provides information, experience, and support on challenges associated with raising a child with Down syndrome. We share this information with parents, family members, professionals and other individuals through informational meetings with speakers and panels, newsletters, and special events.
  DSSRI also provides support on an individual, parent-to-parent basis. DSSRI offers free New Parent Baskets to new Down syndrome families, which includes books about Down syndrome, pamphlets, toys, and something for mom and dad to help celebrate their new little one.
  
  Open Link Down Syndrome Society of Rhode Island
• FRIENDS (Friends Reaching Inspiring Educating Neighbors About Down Syndrome) Friends promotes community understanding and acceptance of individuals with Down syndrome. Be a part of our group as we offer our families and caregivers multiple ways to connect with other families and professionals in our area. Our dedicated board and volunteers make this happen by organizing fund raisers, workshops, family social events, and fun age-appropriate group events for our loved ones. Learn more about us and join in!
  Open Link FRIENDS (Friends Reaching Inspiring Educating Neighbors About Down Syndrome)
• Down Syndrome Association of the Upstate The Down Syndrome Association of the Upstate is a non-profit organization with 501(c)(3) status, whose mission is to enrich the lives of people affected by Down Syndrome. We do this by providing support and education through the sharing of ideas and resources and promoting awareness and community involvement.
  Open Link Down Syndrome Association of the Upstate
• Center for Enriched Living Enriching the lives of individuals with developmental disabilities by maximizing their opportunities for personal success, fun & friendship, employment, and community involvement.
  Social Programs/Summer Camp
  Open Link Center for Enriched Living
• Clarksville Association Down Syndrome Programming and community engagement are at the core of our strategy. We invest heavily in creating a support network for individuals with Down syndrome, their families and the community, as well as deliver reliable tools to those who need them most.
  Open Link Clarksville Association Down Syndrome
• Central Mississippi Down Syndrome Society CMDSS is a parent-driven non-profit organization that provides support services for parents of children with Down syndrome and promotes awareness, acceptance, and inclusion of individuals with Down syndrome.
  Scholarships/Grants/ Transition to Adulthood
  Open Link Central Mississippi Down Syndrome Society
• Upper Peninsula Down Syndrome Association Support for parents of children any age with Down syndrome and their families.
  Open Link Upper Peninsula Down Syndrome Association
• Down Syndrome of Puget Sound Our organization is built on a commitment to serve all individuals with Down syndrome and their families while actively inspiring all of society to make inclusivity part of their daily lives. Education/Outreach/Advocacy
  Open Link Down Syndrome of Puget Sound
• Grand Strand Down Syndrome Society Social groups, Swim programs, Educational help from babies to adults
  Open Link Grand Strand Down Syndrome Society
• Down For Dance DOWN FOR DANCE (DFD) is driven by a deep passion to develop and offer high quality arts programming to those populations where it is not always accessible.
  
  DFD currently serves over 180 students across 22 states, with both an in-person and online program. With the launch of our online program in summer 2020, we were able to expand beyond dance & now also offer art & yoga.
  Open Link Down For Dance
• Red River Valley Down Syndrome Society Individuals with Down syndrome and other intellectual disabilities receive free one-on-one tutoring. The REACH Center is also the location for meetings, workshops, the lending resource library, computer lab, and will soon open its doors for an after school recreation program.
  Open Link Red River Valley Down Syndrome Society
• Down Syndrome Association of Greater Cincinatti Our programs focus on therapeutic, recreational, educational and social opportunities for all ages. We tailor our offerings to reflect the need of our local families as we strive to provide valuable support and quality programs for those in our community.
  Open Link Down Syndrome Association of Greater Cincinatti
• Alaska Down Syndrome Network We are a parent support group – parents who have banded together to share our experiences and help each other learn along the journey of raising our children and our “special” child. We have no staff, or office, or professionals running the program. We do as there are people with a passion to do, so “services” may vary over time.
  
  Our main broad goals are:
  -New parent information and support including a new parent gift basket and books
  -Parent support through social activities and educational offerings / sharing “what works”
  -Physician and community education
  -Professional educational offerings
  -Library of current books
  Open Link Alaska Down Syndrome Network
• Club21 Learning & Resource Center Club 21 provides the educational tools and resources that enable individuals with Down syndrome to be fully included. From first diagnosis onward, Club 21 Learning and Resource Center empowers families to identify the needs of their child with Down syndrome and teaches them how to navigate the terrain of the medical, educational and Regional Center systems to maximize their child’s potential. For that to be a reality, our programs and services focus on 4 essentials:
  -family support
  -school support
  -direct educational training
  -community building
  At Club 21, from first diagnosis, families are equipped with a new vision for their future. Families are given new tools and resources to make that vision a reality, as well as having a strong community to support and encourage them along the way. Vision, resources, and community enable individuals with Down syndrome to have independence, access, belonging and a life of their choosing.
  Open Link Club21 Learning & Resource Center
• The Arc Westchester We are the largest agency in Westchester County supporting children, teens and adults with developmental disabilities, including individuals on the autism spectrum, and their families.
  Over 700 employees provide more than 2,000 individuals throughout the county with a broad range of innovative and effective programs and services designed to foster independence, productivity and participation in community life.
  Open Link The Arc Westchester
• Arkansas Down Syndrome Association Arkansas Down Syndrome Association (ADSA) was incorporated in 2004 and is a 501c3 nonprofit organization. ADSA is dedicated to advocating for healthy, inclusive, and productive lives for people with Down syndrome (DS). We serve our DS community by providing free events and services for families across Arkansas—as well as sponsor awareness and educational materials for schools and communities. We are an all-volunteer organization guided by a diverse board of directors made up of medical professionals, members of our local business community and parents of children with DS. Our website, www.ardownsyndrome.org, is the largest and most comprehensive of Arkansas-based websites for families with DS—and includes valuable advocacy, educational, legal, medical, and tax resources.Arkansas Down Syndrome Association promotes and enhances the overall health and well-being of people with Down syndrome and their families.
  Open Link Arkansas Down Syndrome Association
• Down Syndrome Association for Families of Nebraska THE MISSION OF THE DOWN SYNDROME ASSOCIATION FOR FAMILIES OF NEBRASKA IS TO IMPROVE THE LIVES OF INDIVIDUALS WITH DOWN SYNDROME, BY EMPOWERING THEM AS WELL AS EDUCATING AND SUPPORTING THEIR FAMILIES AND THE LARGER COMMUNITY.
  A COMMUNITY THAT ACTIVELY INCLUDES, FULLY EMBRACES, AND SUPPORTS ALL INDIVIDUALS WITH DOWN SYNDROME BY PROVIDING OPPORTUNITIES TO CONTRIBUTE AS VALUED CITIZENS WHO HAVE THE CHOICES TO CREATE THEIR OWN PATHS OF FULFILLMENT AND SUCCESS.
  
  Open Link Down Syndrome Association for Families of Nebraska
• Rio Grande Down Syndrome Network Rio Grande Down Syndrome Network is a nonprofit organization whose mission is to empower individuals with Down syndrome and their families through advocacy, education and support. We are a collaborative network which seeks to create awareness, assure inclusion, and promote independence in individuals with Down syndrome.
  Open Link Rio Grande Down Syndrome Network
• The Arc- Parents of Down Syndrome of Northeastern Pennsylvania The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.
  Open Link The Arc- Parents of Down Syndrome of Northeastern Pennsylvania
• Down Syndrome Association of Middle Georgia The Down Syndrome Association of Middle Georgia was formed in 2005 as Middle Georgia Buddy Walk working with the National Down Syndrome Society to organize an annual Buddy Walk to raise awareness and funding for programs at the local and national level benefiting individuals with Down Syndrome.
  Open Link Down Syndrome Association of Middle Georgia
• Willamette Valley Down Syndrome Association Our goal is to provide support for individuals and families impacted by Down syndrome in Oregon's Willamette Valley and surrounding areas. We hope that you find answers, love, and assistance whether you are new parents, a self-advocate, a family member or friend of a child (or adult :-) with Down syndrome.
  Open Link Willamette Valley Down Syndrome Association
• The Arc Whatcom County To improve the quality of life, increase the independence and assure the full inclusion in the community of all persons with developmental disabilities.
  Open Link The Arc Whatcom County
• Down Syndrome Society of Wichita Our mission is to provide programs and services that educate, connect, develop and advocate to improve the lives of the Down Syndrome community.
  Family mixers, Summer programs, Adult programs to work toward independent living
  Open Link Down Syndrome Society of Wichita
• Family Outreach The focus of our program is to teach families and friends how to teach skills to children and adults with special needs. In addition, the families and friends often request education regarding the disability and information about resources and services available. We work hard to ensure that children and adults in the Family Outreach program have the same opportunities that all Montanans have in education, in the community, in friendships, and in life.
  Open Link Family Outreach
• Colorado Springs Down Syndrome Association Providing support and encouragement to families of children with Down syndrome…that is our primary mission here at the Colorado Springs Down Syndrome Association (CSDSA)!
  A small group of parents founded the CSDSA in 1989, and more than 30 years later we remain dedicated to encouraging fellowship and sense-of-community amongst our families. We continue our mission to inform and empower our families while promoting community awareness of the dignity, promise, and potential of all people with Down syndrome. The CSDSA is a volunteer-based, non-profit organization serving Colorado Springs and its surrounding communities.
  
  
  Open Link Colorado Springs Down Syndrome Association
• Manasota BUDS Manasota BUDS provides individuals with Down syndrome and their families with services, programs, and support. Our members with Down syndrome range in ages from newborn to adult. Our organization has its highest concentration of members in Manatee and Sarasota Counties; however, we have members throughout the entirety of the Florida Gulf Coast. Altogether, Manasota BUDS serves over 250 families directly impacted by Down syndrome.
  Open Link Manasota BUDS
• Central Illinois Down Syndrome Organization To enhance the quality of life of those born with Down syndrome through the establishment of life-long opportunities by continuing to educate, inform and support families, professionals and communities.
  Goals:
  To support families as they adjust to the birth of a child with Down syndrome.
  To provide informational and educational opportunities to families and interested persons.
  To provide support for new and expanded educational, recreational, social, vocational, and residential opportunities for individuals with Down syndrome.
  To provide legislative, informational, and advocacy support on issues impacting the lives of people with Down syndrome.
  To provide social support to families.
  To provide public awareness activities.
  Open Link Central Illinois Down Syndrome Organization
• Down Syndrome Alabama The vision of Down Syndrome Alabama is to empower individuals with Down syndrome to live meaningful lives as contributing members of their communities throughout all stages of life.
  *Scholarship opportunity
  Open Link Down Syndrome Alabama
• Down Syndrome Association of Jacksonville The Down Syndrome Association of Jacksonville is here to offer you support and guidance. We encourage you to learn all you can about Down syndrome and to embrace hope for a promising future. Our goal is that the New Parent Packet will give you guidance as you begin understanding the diagnosis and optimism for a bright future.
  Soccer groups and Social clubs
  Open Link Down Syndrome Association of Jacksonville
• Down Syndrome Advocates in Action Nebraska This group is open to anyone in the state of Nebraska who has a loved one, student, patient, classmate, friend, neighbor or acquaintance who happens to have Down syndrome. Just answer a short questionnaire to help us serve you better.
  Open Link Down Syndrome Advocates in Action Nebraska
• Down Syndrome Association of Central Kentucky The Down Syndrome Association of Central Kentucky exists to celebrate our Down syndrome community, support individuals with Down syndrome and their families in our region, and educate ourselves and others about the true joys and challenges of Down syndrome.
  Book Clubs/Cooking Class/Summer Camps/Mindful Movement and many other programs!
  Open Link Down Syndrome Association of Central Kentucky
• Catholic Medical Association Catholic Doctors by State and Specialty
  Open Link Catholic Medical Association
• Down Syndrome Organization of Southern Nevada Founded in 1987 by a group of parents gathered around a kitchen table. Today, we’ve grown to become an organization which serves thousands in Southern Nevada.
  We are recognized as the authority and leading expert voice in Nevada for all people affected by Down syndrome.
  Our mission is to enlighten the public by promoting a positive understanding of Down syndrome in the community and be a source of support, information, and education for families and individuals with Down syndrome.
  Open Link Down Syndrome Organization of Southern Nevada
• Down Syndrome Association of Southern New Jersey DSASNJ is ready to provide information, support, and guidance. You can read various freely available resources on your own, or contact us for support. We can meet with you in person, or talk over the phone or via e-mail. Please reach out to one of our Outreach Coordinators.
  
  If you desire, we can make arrangements for you to meet people with Down syndrome of various ages, or their families. We can match you with a parent mentor if you wish, including parents who have had a prenatal diagnosis, or who have experienced a specific medical condition.
  Open Link Down Syndrome Association of Southern New Jersey
• National Down Syndrome Society To empower individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
  To ensure all individuals with Down syndrome are assured their human rights and valued by a more inclusive society.
  Founded in 1979, the National Down Syndrome Society (NDSS) empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions. The organization’s work is achieved through three key areas of programming: Resources & Support, Advocacy & Policy, and Community Engagement.
  Open Link National Down Syndrome Society
• Down Syndrome Connections Northwest Ds Connections Nw is a network of support, information and resources for everyone! We provide a single point of connection for people with a Ds diagnosis, their families and the community at large.
  Open Link Down Syndrome Connections Northwest
• Down Syndrome Family Support and Advocacy Group / Michiana Down Syndrome The mission of Michiana Down Syndrome is to help improve the lives of individuals with Down syndrome and their families through advocacy, education, research, and fellowship.
  Our Vision
  The vision of Michiana Down Syndrome is to help foster a community of acceptance which promotes the best opportunities for individuals with Down syndrome in helping them to achieve their greatest potential and realize their dreams.
  Open Link Down Syndrome Family Support and Advocacy Group / Michiana Down Syndrome
• Down Syndrome Association of Houston The Down Syndrome Association of Houston is here to help and support you throughout your journey as the parent, family member, or caregiver of an individual with Down syndrome
  Open Link Down Syndrome Association of Houston
• Hawaii Dept. of Health-Children with Special Needs Branch Resources for children and their families
  Developmental Screenings and Early Intervention
  Open Link Hawaii Dept. of Health-Children with Special Needs Branch
• Down Syndrome Association of Brazos Valley Our community-based support allows us to host and sponsor regular social activities, year-round educational programs, conferences, workshops, and community events. We are fortunate to live in a loving and inclusive community that is aware of the inherent worth, value, and contributions of people with Down syndrome, as well as those with other disabilities.
  Open Link Down Syndrome Association of Brazos Valley
• Families Helping Families of Southwest Louisiana Families Helping Families of Southwest Louisiana is here to help you not be so overwhelmed. Our trained, experienced staff are parents or family members of individuals with disabilities or individuals with disabilities themselves. They have walked in your shoes and dedicated to helping you navigate the service delivery systems we all often depend on in order to get the services and supports our loved ones need.
  Open Link Families Helping Families of Southwest Louisiana
• Down Syndrome Association of SWLA Our Mission is to enhance the quality of life for individuals with Down syndrome by fostering family engagement, encouraging connections and providing information.
  We serve the five parish region: Allen, Beauregard, Calcasieu, Cameron, and Jefferson Davis Parishes
  Open Link Down Syndrome Association of SWLA
• Gulf Coast Down Syndrome Society The purpose of the Gulf Coast Down Syndrome Society is to build a supportive network for families and individuals with Down syndrome to share information, strength and hope. It is our mission to ensure that all people with Down syndrome have the opportunity to achieve their full potential in community life. At the same time, it is our goal to provide children and adults with Down syndrome peer groups in which they can form lifelong friendships. Parents, family members, individuals with Down syndrome, and anyone else interested in learning more are welcome to attend any of the events sponsored by GCDSS.
  Open Link Gulf Coast Down Syndrome Society
• DSI DADS (formerly Dads Appreciating Down Syndrome) Here at Down Syndrome Indiana, we believe the attitude of the father becomes the attitude of the family! Down Syndrome Indiana currently hosts the monthly D.A.D.S.® meetings in Indianapolis are NOT a “support group” in the stereotypical mold: church basement, folding chairs, bad coffee in Styrofoam cups. Just as the roles of fathers have changed in our lifetime, D.A.D.S.® addresses the changing roles of fathers in the Down syndrome movement with FELLOWSHIP, ACTION and SUPPORT.
  Any dad – or grandfather, uncle, brother, teacher, physician – who cares for someone who has Down syndrome, is invited.
  Open Link DSI DADS (formerly Dads Appreciating Down Syndrome)
• Kern Down Syndrome Network To help empower, inform, and enhance the lives of people with Down Syndrome and their support networks through programs and events created by our community.
  Combining the training materials from multiple Down Syndrome organizations, Kern Down Syndrome Network has created its own training with our community’s needs in mind.
  Open Link Kern Down Syndrome Network
• Down Syndrome Association of Memphis & The Mid-South Our mission is to support and empower individuals with Down syndrome and their families. DSAM seeks to promote inclusion of all individuals with Down syndrome by providing families and our communities with up-to-date information and education, enhancing public awareness of the inherent worth, value, and contribution of these individuals to society and fostering positive attitudes regarding people with Down syndrome.
  Open Link Down Syndrome Association of Memphis & The Mid-South
• Down Syndrome Association of South Texas We offer support for families through the following groups:
  New and Expectant Parents
  MOMS
  DADS
  Siblings
  Spanish Support
  Parent Education
  We also offer a variety of programs and activities for individuals with Down syndrome and their families from birth through adulthood.
  Open Link Down Syndrome Association of South Texas
• Down Syndrome Association of North Central Iowa (DSA of NCI) Our nonprofit organization was founded in 2013 by a group of dedicated parents who came together for one reason – to make the lives of people with Down syndrome better.
  Our mission is to provide support, education and advocacy to individuals with Down syndrome and their families. We strive to empower them and to promote their unique contributions by fostering inclusive and integrated environments in their communities. Quarterly Meetings.
  Open Link Down Syndrome Association of North Central Iowa (DSA of NCI)
• Virginia Down Syndrome Association Whether you’re the parent or family member of someone diagnosed with Down syndrome, a person with Down syndrome, a local business or simply a member of the community looking to make a difference, there is a place for you!
  Open Link Virginia Down Syndrome Association
• Linda Crnic Institute for Down Syndrome Our mission is to significantly improve the lives of people with Down syndrome through advanced biomedical research.
  Open Link Linda Crnic Institute for Down Syndrome
• Utah Down Syndrome Foundation We connect parents and caregivers to resources and information to help them successfully navigate Down syndrome.
  Open Link Utah Down Syndrome Foundation
• St. Clair Down Syndrome Support Group We want to provide all the support and encouragement to everyone that affiliates with Down Syndrome and their families.
  
  We also like to provide families with current information on Down Syndrome. Promote Public awareness of Down Syndrome.
  
  We gladly provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.
  Open Link St. Clair Down Syndrome Support Group
• Down by the Border The mission is to enhance the quality of life and provide support to persons with Down syndrome and their families through promotion of public awareness, advocacy and information sharing with a distinct goal in mind to help individuals with Down syndrome fulfill their dreams and life aspirations.
  Open Link Down by the Border
• The Down Syndrome Support Team The Down Syndrome Support Team was formed by a small group of parents that wanted to share the experiences of having a child with Down syndrome. The Down Syndrome Support Team located in SE Michigan offers play groups, outings, Parent’s & Mom’s nights out, and provides activities and classes such as dance, karate, swim lessons, and more for children and adults with Down syndrome. Our main goal is to connect families with a community and resources, increase awareness and acceptance of Down syndrome in our local communities, and help individuals with Down syndrome to reach their full potential.
  Open Link The Down Syndrome Support Team
• The Down Syndrome Association of Greater Winston-Salem The Down Syndrome Association of Greater Winston-Salem is a nonprofit organization which provides support and information to parents of children and adults with Down syndrome in the Piedmont area. Our aim is to support each other and enrich the lives of our children and adults so they can reach their full potential.
  
  Our group meets periodically to encourage and strengthen each other, by striving to increase our knowledge, understanding and hope about Down syndrome. We host guest speakers and share new information, ideas and advice to become better advocates for our children.
  Open Link The Down Syndrome Association of Greater Winston-Salem
• National Association for Down Syndrome he National Association for Down Syndrome supports all persons with Down syndrome in achieving their full potential.
  We will:
  Provide families with Down syndrome members with information and resources to enable them to access and evaluate appropriate services.
  Educate the public about Down syndrome.
  Address social policy issues and challenges facing the Down syndrome community.
  Facilitate and encourage active participation by self-advocates and families in the delivery of education, vocational, residential and other services for persons with Down syndrome.
  Our Services:
  Parent Support
  Congratulations Basket Program
  Resource Referrals
  Public Awareness
  Self-Advocate Program
  More Than Down Syndrome Workshops
  NADS Connections Program
  Virtual Seminars
  Public Speakers for Schools, Medical Professionals, and Community Organizations
  Open Link National Association for Down Syndrome
• Peninsula Association for Remarkable Children & Adults PARCA, Partners & Advocates for Remarkable Children & Adults, has been enriching the lives of people with developmental disabilities since 1952. Our programs are designed to create a feeling of extended family to help people live as independently as possible and enjoy all that life has to offer. PARCA provides residential programs, support for those living independently, respite care, before- and after-school child care, and family support and advocacy services.
  
  PARCA is committed to providing support to our clients and their families at all stages of their lives. Children’s Services includes REACH, a unique inclusive child care program serving kids with and without developmental disabilities and Raji House, a weekend respite care program for children and teens with developmental disabilities. These programs use positive learning and recreational activities that emphasize the similarities between each person rather than the differences. All PARCA children’s programs are licensed by the Department of Social Services.
  Open Link Peninsula Association for Remarkable Children & Adults
• Down Syndrome Alliance of the Midlands The Down Syndrome Alliance of the Midlands is committed to connecting those touched by Down syndrome through education, advocacy and support. Our efforts include:
  Parent Outreach
  Newborn Gifts & Parents Guides
  New Parent Connection Events
  Moms, D.A.D.S. & Grandparents groups
  Social events to promote a sense of community
  Education Advocacy
  Down Syndrome Education Series that brings national experts in the fields of Down syndrome education, research, and health care to address Omaha families
  Self Advocate Scholarship Program
  Family Stipends for Conferences
  Outreach to twenty school districts
  Events to raise awareness and promote inclusion
  Medical Outreach
  Open Link Down Syndrome Alliance of the Midlands
• 21 Down 21 Down membership is free and is open to any family who has a loved one with Down syndrome or other developmental disablity. Our activities are geared to the young and old, so no matter the age of your loved one with a disability we welcome you to join 21 Down.
  21 Down hosts an event every month for our families to enjoy. Whether it is a dance, holiday party, quarterly meeting, day at the beach, day at Storybookland or a family activity we encourage all of our families to join in the fun! The children get to socialize together while the parents can network with other parents who are going through the same experiences they are raising a child with a disability. All of these events are free of charge to our members.
  Open Link 21 Down
• Pathfinder Services of North Dakota We have links to various agencies and organizations in North Dakota serving families of a child, teen, or young adult with a disability.
  Open Link Pathfinder Services of North Dakota
• Down Syndrome Foundation of Southeast New Mexico What We Do
  Support Those Touched by Down Syndrome
  Bring Awareness to the Community
  Educate on Down Syndrome Issues
  Advocate for Those with Down Syndrome
  Connect People with Resources
  Open Link Down Syndrome Foundation of Southeast New Mexico
• T21 Club of the Delaware Valley Facebook group to support awareness and inclusion of those with Down Syndrome
  Open Link T21 Club of the Delaware Valley
• Down Syndrome Association of Western Michigan DSAWM programs and services are designed to address barriers and support opportunities for people with Down syndrome, their families, and communities. Click the links below to view current program offerings, or view the DSAWM calendar for schedule information. All programs and services are free with In-Area Family Membership.
  Open Link Down Syndrome Association of Western Michigan
• The Brighterside of Down Syndrome The Brighterside of Down Syndrome was founded in 2006 by Jean Wiltz and Carrie Norris, proud moms of children with Down Syndrome. These two moms had first hand experience with the joys and the hardships of raising a child with individual, special needs. These friends knew the joy of celebrating each other’s victories, and the security of having support during inevitable challenges, making the journey with their child so much richer. Jean and Carrie saw a need in the central valley for an organization to connect and serve families living with Down syndrome.They understood the importance of connecting with other families on this adventure. TBODS was formed to provide support and connection for families in all of San Joaquin County, and at that time no other group in the area was dedicated to advocate specifically for persons with Down syndrome.
  Open Link The Brighterside of Down Syndrome
• Down Syndrome Network of West Virginia We provide up-to-date resources, including information about what Down syndrome is offer support and training to parents, caregivers and medical professionals
  Open Link Down Syndrome Network of West Virginia
• Down Syndrome Connection of NW Arkansas Our mission is to facilitate inclusion and respect for individuals with Down syndrome within the Northwest Arkansas Community, ensuring that they have access to the support and the resources necessary to reach their full potential at all stages of life.
  Our vision is a Northwest Arkansas Community in which individuals with Down syndrome are able to participate in a meaningful way at work and at play, are able to achieve their aspirations, and are welcomed as valued community members.
  Open Link Down Syndrome Connection of NW Arkansas
• Down Syndrome Connections Las Vegas We are a Down syndrome organization located in Southern Nevada that focuses solely on supporting families who have someone with Down syndrome, advocating for the Down syndrome community and educating ourselves and the public with the latest information available. We offer free and low cost programming, and have Spanish language offerings as well.
  Open Link Down Syndrome Connections Las Vegas
• Down Syndrome Association of Delaware Founded in 1979, the Down Syndrome Association of Delaware is a non-profit organization which supports families, promotes community involvement, and encourages a lifetime of opportunities for people with Down syndrome. We envision a community in which individuals with Down syndrome are healthy, happy, and successful. They and their families are effective advocates for their needs.
  The DSA of Delaware was founded by parents of children with Down syndrome and continues to be driven by parents, family members and others who have a passion for individuals with Down syndrome. Together we share knowledge and experiences with other families, and help and support new parents. We promote the need to continue to educate ourselves, educational and medical professionals and the public about Down syndrome. We embrace all of the things our children can do and their potential to be an integral part of our local communities.
  Open Link Down Syndrome Association of Delaware
• Down Syndrome Network AZ Our mission at DSNetwork is to educate, support and advocate for those in our community touched by Down syndrome. DSNetwork achieves this goal through an open, supportive and collaborative network that connects individuals and families with needed resources and information.
  Open Link Down Syndrome Network AZ
• Angels Up North Down Syndrome Group support group run by family
  Open Link Angels Up North Down Syndrome Group
• Down Syndrome Association of Roanoke The Down Syndrome Association of Roanoke, VA is made up of families, friends, professionals, and individuals with Down syndrome in Southwestern Virginia.
  Open Link Down Syndrome Association of Roanoke
• Mat-Su Services for Children and Adults MSSCA’s Mission is to partner with individuals and families, delivering excellent support services, and building community by promoting dignity, respect, independence, and diversity.​
  
  MSSCA provides a wide range of home and community based services for Mat-Su residents with intellectual or developmental disabilities, families with children experiencing developmental delays or disabilities and parents with questions about child safety and child development.
  Open Link Mat-Su Services for Children and Adults
• Down Syndrome Awareness Group of East Tennessee We have lots of events going on throughout the year – social and educational. We are here to network families, answer questions, let you know about resources available and to raise awareness about the endless abilities of all our friends with Down syndrome. But most importantly, we are like a large extended family through our children with Down syndrome. While the news of your child having Down syndrome may have come unexpectedly, your life will be full of many wonderful surprises and experiences. DSAG is here to help celebrate with you and support you along the way. Our Down Comfort Gift program welcomes parents of children with Down syndrome with up-to-date information, resources and a community who will support you along your journey.
  Open Link Down Syndrome Awareness Group of East Tennessee
• Down Syndrome Guild of Dallas THE DOWN SYNDROME GUILD OF DALLAS PROVIDES ACCURATE AND CURRENT INFORMATION, RESOURCES, AND SUPPORT FOR PEOPLE WITH DOWN SYNDROME, THEIR FAMILIES AND THE COMMUNITY.
  Open Link Down Syndrome Guild of Dallas
• Bringing Up Down Syndrome BUDS is a non-profit organization in North Alabama that has existed for over 16 years and boosts almost 400 members!
  BUDS is there to offer support, encouragement, and personal experience to these families as well. BUDS wants to help each family see that their child is still a precious gift… just a different gift in a different package.
  Open Link Bringing Up Down Syndrome
• Early Intervention Each state has its own set of laws governing early intervention services. Early intervention services are individualized to meet the specific needs of each individual baby based on assessments. The caseworker, therapists, and family will determine areas of focus and set goals based on developmental milestones. These will be recorded in a document called the Individualized Family Service Plan
  Open Link Early Intervention
• Down Syndrome Family Resource Center Our mission is to enhance the lives of people with Down Syndrome and their families through support, education and advocacy. We strive to increase public awareness of people with Down Syndrome through recreational activities, social opportunities and education programs.
  Open Link Down Syndrome Family Resource Center
• Down Syndrome Parents Group of Western New York The Down Syndrome Parents Group of Western New York is a 501c3 non-profit organization which was formed in October of 1979 by a group of parents whom connected through the common bond of parenting children born with Down syndrome. Having found no regional support network available at the time, and little information readily available about the genetic disorder, they decided that such an organization was greatly needed.
  Since its inception, the group has supported hundreds of families in and around the Western New York area while promoting awareness of Down syndrome, and acceptance of individuals born with Downs. Through a series of annual events which have become a yearly tradition for many families in the area, DSPGWNY has continually expanded awareness of Down syndrome while enriching the lives of the many people whom have taken part.
  Social gatherings/support groups
  
  Open Link Down Syndrome Parents Group of Western New York
• Down Syndrome Association of the Heartland Down Syndrome Association of the Heartland (DSAH) offers support to individuals with Down syndrome, as well as their families, friends, caregivers, teachers, and coworkers. DSAH strives to educate the public-at-large about Down syndrome. We want every individual who has been touched by Down syndrome, regardless of age, to have access to support and services which would aid each individual in reaching his or her individual potential.
  Purpose Statement
  On your side, by your side…..from prenatal awareness to legacy.
  Open Link Down Syndrome Association of the Heartland
• Exceptional Parents Unlimited EPIC – formally known as the Infant Family Program – was established in 1979 to provide early intervention services to families with infants & toddlers born with medical and/or developmental needs to ensure every child is able to reach his/ her full potential.
  Services are based on the unique needs of each child and family, working one-on-one, in the park, or any other environment where the family and child live, learn and play.
  Open Link Exceptional Parents Unlimited
• Maine Down Syndrome Network First Call – Whether you’ve just received a diagnosis through prenatal testing, or you’ve just given birth to a baby who has Down syndrome, or you’ve just moved to the area, MDSN’s First Call program is here to help you find other parents whose situations and/or locations are similar to yours, and to help you find the support and services you need. Our caring First Call Committee members are specially trained and can connect with you in whatever way you are most comfortable (email, phone, in-person).
  Open Link Maine Down Syndrome Network
• Coastal Alabama Down Syndrome Society We are dedicated to providing individuals with Down syndrome in the Coastal Alabama area with unlimited opportunities to Grow Beyond Expectations.
  Open Link Coastal Alabama Down Syndrome Society
• Down Syndrome Associaiton of Wisconsin - Fox Cities Classes and support - free options and many virtual offerings
  Open Link Down Syndrome Associaiton of Wisconsin - Fox Cities
• Down Syndrome Association of Central Florida With the right support and resources, people with Down syndrome can do anything! If you have Down syndrome or care for someone who does, DSACF is here to help you (and your loved ones) reach your greatest potential and live the best life possible.
  Programs for Parents and Children from birth through adulthood
  Open Link Down Syndrome Association of Central Florida
• Champlain Valley Down Syndrome Group We are friends, parents, siblings, and grandparents. We share our experiences in order to learn from each other. We understand the unique needs of raising a child with Down syndrome.
  First Call, Camps, Social groups
  Open Link Champlain Valley Down Syndrome Group
• East Texas Down Syndrome Group Mission:
  Provide support to people with Down syndrome and their families;
  Educate and inform our community about people with Down syndrome and the gifts and blessings they bring;
  Promote acceptance and inclusion of people with Down syndrome in all aspects of society.
  To accomplish this mission we provide information, education, and support to self-advocates and families in East Texas. We believe that as parents, we are the primary advocates for our children and in so doing we can educate our families, friends, schools, and community at large of the inherent qualities and contributions that individuals with Down syndrome possess.
  Open Link East Texas Down Syndrome Group
• Down Syndrome Foundation of Orange County Our Mission:
  To serve people with Down syndrome by developing educational, social and support programs delivered in partnership with individuals, families, professionals and communities.
  
  Programming - DSF is a leader in the development of educational programming for students with Down syndrome. DSF's program goals are to improve academic and social outcomes and maximize independence in adulthood.
  
  Education - Through its programs, DSF shares strategies, resources and activities with parents, students, educators and other Down syndrome groups through face-to-face, online and partnership models.
  
  Collaborating - DSF partners with researchers, educators, Down syndrome groups, and members of its community to increase the scope and impact of its work.
  Open Link Down Syndrome Foundation of Orange County
• Up with Downs Up with Downs, is a non-profit organization that was started in the early 1990’s. The mission of Up with Downs is to be the local advocate in the Shreveport Bossier City area for our Down Syndrome community. Our group's goal is to help enhance the quality of life for all individuals with Down Syndrome by providing resources and support to those individuals, their families, professionals and the community.
  Open Link Up with Downs
• The Montana Down Syndrome Association The Montana Down Syndrome Association was formed in Missoula, Montana in the spring of 2014 by families and friends of persons with Down syndrome. We recognize the need for families to get together to learn from each other and provide support. We also wanted to make sure that families know about the resources, research, and services that are available for individuals with Down syndrome.
  Our mission is to honor and nurture the extraordinary lives of people with Down syndrome by advocating for them as well as providing educational, financial, social, and emotional support.
  Open Link The Montana Down Syndrome Association
• Parents Helping Parents We envision a world where individuals of all abilities are valued, respected, and included.
  We want families to be filled with hope and optimism about their loved ones.
  We share knowledge and skills to create meaningful opportunities and plan for a secure future.
  We value diversity and endeavor to have our staff, board, volunteers, and donors reflect the community we serve.
  With 40+ years of supporting families, our experienced staff members have a national reputation for being a trusted source of information for helping parents, caregivers, and children with special needs.
  
  
  Open Link Parents Helping Parents
• Galveston-Houston Families Exploring Down Syndrome The mission of GHFEDS is to provide support and resources to individuals with Down syndrome and their families and to promote awareness, understanding and inclusion in their communities.
  Open Link Galveston-Houston Families Exploring Down Syndrome
• Down Syndrome Support Network of Stark County support group
  Open Link Down Syndrome Support Network of Stark County
• Chattahoochee Valley Down Syndrome Association The Chattahoochee Valley Down Syndrome Association serves to enhance the lives of all individuals with Down syndrome by providing information and support to the individuals, their families and the professionals working with them. Our group educates the community to promote acceptance, respect and inclusion of individuals with Down syndrome.
  Open Link Chattahoochee Valley Down Syndrome Association
• Luzerne County Down Syndrome Network LCDSN’s mission is to advance acceptance and inclusion of people with Down Syndrome while raising funds for qualified local and national non-profit education, research and support programs.
  GRANTS programs
  Open Link Luzerne County Down Syndrome Network
• Northeast Mississippi Down Syndrome Society Facebook Support Group
  Open Link Northeast Mississippi Down Syndrome Society
• Eastern Maine Down Syndrome Support Our mission is to provide resources and to create community support for those with Down Syndrome. Created by Moms.
  Open Link Eastern Maine Down Syndrome Support
• Hopes and Dreams Foundation Hopes and Dreams is a no fee, all volunteer 501(c)(3) non-profit organization providing inclusive programs in music, theater, dance for children and young adults with Down syndrome and differing abilities.
  The Hopes and Dreams highlights the talents of participants with various abilities and holds performances based on their interests as well as popular movies and musicals.
  Open Link Hopes and Dreams Foundation
• Treasure Valley Down Syndrome Association The Treasure Valley Down Syndrome Association is made up of parents, grandparents, siblings, cousins, friends, and volunteers who share one commonality – love for someone with Down syndrome.
  Where other people see differences, we see joy, kindness, and wisdom. We see a person who has blessed us by being in our lives.
  We want all parents to have what they need to help their child with Down syndrome reach their full potential. We provide support and education through parent meetings, workshops, reading materials, and more.
  Open Link Treasure Valley Down Syndrome Association
• Inland Valley Down Syndrome Association Inland Valley Down Syndrome Association is here to provide you with resources, support, education, direction. One valuable resource to help you navigate is our 0-3 Little Steps program which meets monthly.
  Our experience has been that your child will amaze you. He/she will go to school, will learn, share family traits, and will be a unique and wonderful individual that won’t want to be limited! He/she will add more to your family than you could have ever imagined and we are here to help you realize your child’s potential and gifts.
  Open Link Inland Valley Down Syndrome Association
• Down Syndrome Association of San Diego DSA offers a complimentary annual membership to “new” parents (recent diagnosis of Down syndrome, pre/post natal). We respect the individual values of members and strive to meet the diverse needs of families and individuals with Down syndrome. Services and events are free or low cost and include monthly informational meetings, conferences, workshops, support groups and social/recreational events.
  The Family Support Network is invaluable in mentoring parents and people with Down syndrome to effectively advocate for quality education, healthcare, employment and social opportunities throughout the life span. DSA strives to empower families with knowledge and resources, enhancing opportunity for each person with Down syndrome to realize their hopes, dreams and life aspirations.
  Open Link Down Syndrome Association of San Diego
• Montgomery County Down Syndrome Interest Group of Pennsylvania We support individuals with Down syndrome and their families from diagnosis to adulthood through education, advocacy, support, outreach, and social opportunities. Education & Outreach
  Open Link Montgomery County Down Syndrome Interest Group of Pennsylvania
• The Lighthouse Founder Kathy Greene opened The Light House in 1992 as a private special education school because she, as well as parents, therapists and educators, recognized the importance of a community-based program where students of all differences could learn through real life experiences and opportunities.
  
  Since its inception, The Light House has continued to grow and restructure to offer specialized programs that meet the needs of the community. All programs integrate community access, learning, and independent living, and strive to prepare individuals for the next critical step of their life. Today, The Light Houses has three different campuses that serve over 100 individuals every year and cater to a range of different needs.
  *Equine Therapy
  Open Link The Lighthouse
• Michiana Down Syndrome The Down Syndrome Family Support and Advocacy Group (DSFSAG), also referred to as Michiana Down Syndrome, was formed by parents in the 1980s. We are a 100% volunteer, not-for-profit 501c3 organization. We proudly serve St. Joseph, Marshall, LaPorte, Starke, and Elkhart Counties in Indiana and Cass, St. Joesph, and Berrian Counties in Michigan.
  Open Link Michiana Down Syndrome
• The Arc of King County The Arc of King County serves people with intellectual and developmental disabilities across the lifespan: from prenatal diagnosis through end of life care.
  We provide specialized services and activities in English, Spanish, and specifically for African American families. For other languages, we utilize interpreters.
  Open Link The Arc of King County
• Down Syndrome Association of South Georgia The mission of Down Syndrome Association of South Georgia is to benefit the lives of individuals with Down syndrome and their families through support, education, public awareness, and advocacy.
  Open Link Down Syndrome Association of South Georgia
• Ups of Downs Our purpose is to promote the awareness, acceptance, and inclusion of children and adults with Down syndrome in South Dakota.
  Our mission is to provide educational, charitable, recreational, and social events for individuals with Down syndrome and their family and friends.
  Open Link Ups of Downs
• DREAM (Down Syndrome Research, Education and Advocacy of Montana) Website in Progress - will update soon
  Open Link DREAM (Down Syndrome Research, Education and Advocacy of Montana)
• 321Foundation 321foundation is a nonprofit organization whose mission is to empower all people with Down syndrome and other disabilities through advocacy, education, and support.
  Created in 2014 by nine families that have children with Down syndrome, the 321foundation seeks to provide the entire community with information and education to broaden awareness and foster positive attitudes regarding people with Down syndrome and others with different abilities.
  Open Link 321Foundation
• Down Syndrome Association of Central Ohio Support from Diagnosis to Adulthood - Literacy programs, Social gatherings - Sibling support and scholarships available
  Open Link Down Syndrome Association of Central Ohio
• Down Syndrome Association of Connecticut Our mission is to encourage intentionally inclusive communities while providing resources and support to individuals who live with Down syndrome and their advocates.
  Open Link Down Syndrome Association of Connecticut
• Family Ideas Network for Down Syndrome FINDS is a parent support group that delivers opportunities for parents and loved ones with individuals with Down Syndrome and other disabilities. These opportunities are designed to develop the educational and social well-being of the individual, the parents and the family.
  We accomplish this by providing speaker events, educational opportunities, tutoring services, and community awareness. As a parent support group, we focus on the parent as well as the individual with needs. Providing opportunities for social interaction, friendship, and plenty of coffee ensures our parents get a lot out of our group as well.
  Membership is free.
  If you just want to remain in touch with the group without joining as a member, please join our newsletter list.
  
  Open Link Family Ideas Network for Down Syndrome
• The Arc of Shelby County The Arc is recognized as the foremost partner with families and people with developmental and intellectual disabilities to support and enhance the quality of their lives. The Arc does this through advocacy on behalf of individuals and families at all levels, providing information and technical support to individuals, families, and organizations to assist them in fulfilling their dreams.
  Open Link The Arc of Shelby County
• Down Syndrome Association of Brevard, Inc (DSAB) Through our community activities, events, and funding for our local families, we are striving to build a supportive culture of awareness, acceptance, and advocacy throughout Brevard County.
  DSAB is fully funded by generous donations from local partners in advocacy and people like you! All of our funds stay in Brevard County to directly support individuals with Down syndrome and their families living here.
  We offer Fitness and Art classes and Social gatherings
  Open Link Down Syndrome Association of Brevard, Inc (DSAB)
• Central Oregon Disability Support Network Creating positive vision, long-term success, and a community of belonging & support for people with disabilities, along with their families. Serving Central and Eastern Oregon.
  Open Link Central Oregon Disability Support Network
• Northwest Down Syndrome Association We provide support to new families of children with Down syndrome in the form of the New Parent Guide, phone support and monthly Open Arms playgroups. We also hold educational trainings for parents and professionals throughout the year, in addition to social events for families with children of all ages. We are connected with over 1400 families and professionals from around the region, creating a web of support and community. We strive to replace isolation and fear with knowledge, relationships and empowerment. As a social change organization with the mission of creating inclusive communities, we believe that informed, empowered families and enlightened community members are vital foundations for the change we seek.
  
  Open Link Northwest Down Syndrome Association
• South Bay Down Syndrome Association Club 21 South Bay Community Group is for families with children with Down syndrome to locally network, share common interests, concerns, challenges, and information. We do this through informational meetings, play dates, youth group, Facebook webpages and community activities.
  
  Club21SB began life as South Bay Down Syndrome Association serving families with children and adults with Down syndrome in the South Bay area of Los Angeles County. In 2016 we realized that that best way to empower our families, educate others and realize the potential of our children with Down Syndrome was to join Club 21 as a Community Group.
  Open Link South Bay Down Syndrome Association
• Capital Area Down Syndrome Association The Capital Area Down Syndrome Association (CADSA) is a 501(c)(3) nonprofit organization (Tax ID # 55-0821583) that supports people with Down syndrome and their families in the Mid-Michigan area by providing resources, education, advocacy, and awareness. Our objective is to enhance the lives of people living with Down syndrome so they can reach their potential and be valued members of our community.
  Open Link Capital Area Down Syndrome Association
• North Carolina Down Syndrome Alliance As the TDSN began to expand throughout the state the North Carolina Down Syndrome Alliance was born. The NCDSA vision is to expand the First Call Parent Program and other Educational programs across the state. They plan to expand local community groups into underserved areas and partner with other local non-profits to ensure that every single baby born with Down syndrome receives a joyous welcome and parents receive the support and resources they need.
  Support groups/prenatal support/literacy programs
  Open Link North Carolina Down Syndrome Alliance
• Down Syndrome Association of Pittsburgh Programs:
  Expectant Parents
  New Parents
  First Call
  Family Connection Program
  Fitness Programs
  Speaker Series
  Family Care Fund
  DSAP's Community Calendar
  Resources List
  Open Link Down Syndrome Association of Pittsburgh
• Down Syndrome Association of Greater Toledo Our mission at DSAGT is to empower all individuals with Down syndrome to achieve their goals and reach their fullest potential by providing support, education and advocacy not only for the individual, but also their families and communities.
  Open Link Down Syndrome Association of Greater Toledo
• Special Parents Information Network (SPIN) Parents of children with special needs may feel isolated and overwhelmed with the medical, emotional, financial, educational and social issues they face as they raise their child. SPIN is a non-profit parent-to-parent support and information network serving parents, guardians and families in Santa Cruz and San Benito Counties who have a child or children with special needs of any age. SPIN is a Family Empowerment Center on Disabilities. SPIN is also a Family Resource Center serving special needs families with babies 0-3 years old through Special Connections.
  Open Link Special Parents Information Network (SPIN)
• Down Syndrome Awareness Group of Baton Rouge From providing parent support to promoting a better understanding of Down syndrome, DSAG works to promote positive social conditions that foster the full growth and potential of children and adults with Down syndrome.
  Open Link Down Syndrome Awareness Group of Baton Rouge
• Rocky Mountain Down Syndrome Association Rocky Mountain Down Syndrome Association has a number of community groups in the region. These support groups are spaces for families to gather, share information, make connections and learn from the occasional expert speaker.
  Open Link Rocky Mountain Down Syndrome Association
• Broward Gold Coast Down Syndrome Organization The Broward Gold Coast Down Syndrome Organization is a family support and resource organization dedicated to serving families who have an individual with Down syndrome. Our mission is to improve the lives of people with Down syndrome and their families by providing support, information, education, and advocacy, thus enabling each individual to reach his or her full potential.
  Open Link Broward Gold Coast Down Syndrome Organization
• Upside of Downs of Aiken Home Upside of Downs of Aiken is a 501(c)3 nonprofit organization formed in 2010. We are a group of parents, siblings, relatives, friends, educators, and medical professionals who have banded together to gather and share knowledge to assist our families and our community.
  We hope to work together to educate the public about Down syndrome, and to celebrate what individuals with Down syndrome can accomplish.
  Open Link Upside of Downs of Aiken Home
• Centre County Down Syndrome Society To provide individuals with Down syndrome and their families with the tools, resources and support necessary to participate in, contribute to ​and achieve personal fulfillment.​
  Open Link Centre County Down Syndrome Society
• The Arc Minnesota People with intellectual and developmental disabilities and their families contact The Arc Minnesota for information and personal support. Advocates at The Arc have the experience and knowledge to help you.
  Healthcare Assistance/Housing Services/Mentoring
  Open Link The Arc Minnesota
• Delaware County Down Syndrome Interest Group (DSIG) We are dedicated to living successfully.
  We believe our children’s’ futures are bright. We reject the notion that a diagnosis of Down Syndrome predetermines a person’s value or future. We strive to promote professional and public awareness and encourage inclusion for those with Down Syndrome.
  Open Link Delaware County Down Syndrome Interest Group (DSIG)
• Green River Area Down Syndrome Association GRADSA’s mission is to enable families enriched with the Down Syndrome connection to share resources, build friendships, and advocate together for the future of individuals with Down Syndrome. We are located in Owensboro, Kentucky, and serve the counties of Daviess, Hancock, Henderson, McLean, Ohio, Union, and Webster.
  Open Link Green River Area Down Syndrome Association
• Down Syndrome Association of Greater Cincinnati The mission of the Down Syndrome Association of Greater Cincinnati is to empower individuals, educate families, enhance communities and together, celebrate the extraordinary lives of people with Down syndrome.
  Open Link Down Syndrome Association of Greater Cincinnati
• Children's Therapy T.E.A.M Pediatric Therapists Kym Hannah and Cindy Watson founded Children’s Therapy TEAM in 2000. The company has now grown to become the leading out-patient pediatric therapy provider in Northwest Arkansas. Learn More.
  In addition to exceptional speech therapy, physical therapy, occupational therapy, and ABA therapy (birth-21), we offer more specialized pediatric services than any other provider in NWA.
  Children’s Therapy TEAM provides more services and treatment options than any other provider in Northwest Arkansas. Our family-centered approach extends to everything we do. We celebrate a child’s accomplishments, large and small, taking a personal approach to care.
  Open Link Children's Therapy T.E.A.M
• Down Syndrome Association of Central New Jersey The Down Syndrome Association of Central New Jersey is a non-profit organization, dedicated to providing support, education, opportunity and enrichment to persons with Down Syndrome and their families. We are a point of contact for information and support for families who have received the diagnosis either during pregnancy or after birth of their child and through the lifespan. In addition, we educate our community at large about Down Syndrome with the hopes of breaking down barriers, eliminating misconceptions, and promoting inclusion for those with Down Syndrome. Our organization has worked to improve communication in the medical community. We advocate for parents to receive their child’s diagnosis in a sensitive manner, without bias, and accompanied by accurate information on what it means to have Down syndrome and the amazing capabilities of people with Down syndrome. DSACNJ also strives to help children and adults reach their full potential through the development of “Club DREAMS” which will offer academic, therapeutic, and extracurricular programs as well as training in life skills, job skills and provision of job opportunity to people with Down syndrome.
  Open Link Down Syndrome Association of Central New Jersey
• F.R.I.E.N.D.S. Down Syndrome Special Needs West Florida, Inc The Mission of F.R.I.E.N.D.S. is to provide free all-encompassing educational and support services to families who have been impacted by Down Syndrome or other Special Needs; while advocating and promoting community integration.
  
  Our Goals are to provide broad reaching educational services, vital emotional and social support, outreach services, and fun social activities to individuals and families impacted by Down Syndrome or other Special Needs. We proudly serve Hillsborough, Pinellas, & Pasco County.
  
  Open Link F.R.I.E.N.D.S. Down Syndrome Special Needs West Florida, Inc
• Down Syndrome Association of Central Ohio We exist to support families, promote community involvement, and encourage a lifetime of opportunities for people with Down syndrome. We believe this can be achieved by providing families and individuals living with Down syndrome with meaningful, convenient, and unique opportunities to discover independence and to celebrate their achievements.
  Open Link Down Syndrome Association of Central Ohio
• Family Resource Associates Family Resource Associates' (FRA) mission is helping children and people of all ages with disAbilties to reach their fullest potential. FRA connects individuals to independence through innovative therapies, education, employment supports and technology. Acknowledging the powerful influence of the family, we remain committed to them by offering support, resources and education.
  Our Services
  FRA assists individuals of all ages who have developmental delays or disAbilities as well as acquired disAbilities. FRA provides home-based early intervention for infants, therapeutic recreation programs, pre-vocational and educational classes for adults, along with family and sibling support groups.
  Open Link Family Resource Associates
• United Angels Foundation (UAF) We are a parent-to-parent support group. The primary mission of the foundation is to support parents and families of children with special needs. We do this through three main focuses: Interaction, Education, and Resources. Examples of these include: newborn visits; parent lunches; online chat forums; youth and family activities; parent education seminars; and much more. As our name indicates, we view these special children as Angels. We believe that the most effective way to support these Angels is by supporting the parents and guardians who are raising them. We believe that creating a collaborative and inclusive environment will ultimately help to promote the healthy development of the individual child. Parent-to-parent support can be the key to helping a new parent understand and embrace the opportunities and challenges a child with special needs brings into their life.
  Open Link United Angels Foundation (UAF)
• Hawkeye Area Down Syndrome Association Our mission is to provide education, support, and advocacy to those individuals, their friends, families, and professionals in Eastern Iowa blessed by Down syndrome. We hope through our efforts we can enhance the quality of life for all individuals with Down Syndrome.
  Our organization strives to provide opportunities and support, advocate, and educate not only our families blessed by Down Syndrome, but our health care professionals, our schools, and our community.
  We do this through:
  Educational presentations with local and national speakers
  Scholarships to attend national conferences or assist with services not otherwise covered by insurance
  Therapeutic opportunities such as our music therapy group - Do Re Mi
  Family support
  Welcome baskets to new families
  Hospital and home visits to new families
  Create awareness in community
  Educate professionals in community
  Numerous social events for the whole family throughout the year
  Sponsor community events to create awareness
  ​Annual HADSA walk: HADSA’s Step Up For Down Syndrome Walk
  Open Link Hawkeye Area Down Syndrome Association
• Down Syndrome Association of the Hudson Valley The Down Syndrome Association of the Hudson Valley (DSAHV) is committed to helping people with Down Syndrome and their families. We do this by providing events, programs, and resources for members and others in the 5 county region: (Dutchess, Putnam, Orange, Ulster & Sullivan.) This encourages and builds a loving and positive community, one that promotes awareness, empathy, and acceptance of individuals with Down syndrome.
  Open Link Down Syndrome Association of the Hudson Valley
• Miracle Mullen Downs Foundation The Miracle Mullen Downs Foundation (MMF) provides information about Down Syndrome, as well as training parents and siblings on how to handle their "miracle" child. MMF also assists families in getting therapy for their Downs child early and often.
  Open Link Miracle Mullen Downs Foundation
• Down Syndrome Association of Maryland The Down Syndrome Association of Maryland - DSAmd (formerly Chesapeake Down Syndrome Parent Group or CDSPG) provides information and support to individuals with Down syndrome, their families and the broader Down syndrome community. Our programming is offered to self-advocates and those who love them. We also provide information and support to professionals who work with individuals with Down syndrome.
  Open Link Down Syndrome Association of Maryland
• Down Syndrome Association of Wisconsin - Chippewa Valley DSAW-Chippewa Valley is a chapter of the Down Syndrome Association of Wisconsin. We serve Eau Claire and surrounding counties, including Chippewa, Pepin, and Dunn.
  Our goal is to support individuals with Down syndrome or related disabilities and their families in our community.
  Open Link Down Syndrome Association of Wisconsin - Chippewa Valley
• National Down Syndrome Coalition The NDSCoalition aims to create opportunities for children with Down syndrome to shine! Down syndrome touches the lives of many of us today. Families are impacted in every county and that is why the NDSCoalition is making local efforts to reach out to those families affected by Down syndrome in Sacramento, Placer and the surrounding counties.
  Developed by Dana Halle, founder of Down Syndrome Foundation of Orange County, The Learning Program™ focuses on parents as first-teachers for their children bringing the fruits of research into practice. Knowledgeable parents can work more effectively with their children and give them a jump-start on education. Moreover, the program arms parents to serve as capable advocates for their children in the educational process by attending monthly instructional sessions.
  Open Link National Down Syndrome Coalition
• Down Syndrome Community of Greater Chattanooga (DSCGC) The Down Syndrome Community of Greater Chattanooga is proud to serve our local DS community through support, education and awareness. We host inclusive social and fundraising activities throughout the year. We also offer medical and educational/recreational grants, scholarships and awards. We are here to help any way we can!
  Open Link Down Syndrome Community of Greater Chattanooga (DSCGC)
• ABI Community ABI Community is a collaboration of programs, trainings, workshops, resources, and supports that grew around the All Born (in) movement and the annual Cross-Disability Best-Practices Educational Inclusion Conference. ABI is a program of NW Disability Support.
  Open Link ABI Community
• National Down Syndrome Society To empower individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
  To ensure all individuals with Down syndrome are assured their human rights and valued by a more inclusive society.
  Founded in 1979, the National Down Syndrome Society (NDSS) empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions. The organization’s work is achieved through three key areas of programming: Resources & Support, Advocacy & Policy, and Community Engagement.
  Open Link National Down Syndrome Society
• San Diego Down Syndrome Playgroup We are a group of moms and parents in San Diego, California supporting each other and new/expectant parents from diagnosis and beyond. We are focused on building connections and community.
  
  If you are a new or expectant parent who just received a diagnosis of down syndrome and would like to connect, please reach out and let us know how we can support you. We know this can be an emotional time and there are local parents who have walked through these same feelings as you who want to help you on your journey!
  Open Link San Diego Down Syndrome Playgroup
• Down Syndrome Association of Central Oklahoma To raise awareness and provide resources, as well as promote acceptance and inclusion for people with Down syndrome.
  Cooking, Social gatherings, Dad's groups, Tutoring, etc
  Open Link Down Syndrome Association of Central Oklahoma
• Dads Appreciating Down Syndrome To assist and support, through fellowship and action, the fathers, and families of individuals with Down syndrome.
  DADS Omaha is one of over 50 Dads Appreciating Down Syndrome chapters in the United States. Our chapter held its first meeting in April 2008 and serves the entire Omaha/Council Bluffs metro area.
  Open Link Dads Appreciating Down Syndrome
• Project Happie Project HAPPIE is dedicated to providing preschools with books and toys related to Down syndrome to create a more inclusive environment for all children.
  
  This project started as a way to celebrate World Down Syndrome Day, March 21st. (People with Down syndrome have 3 copies of the 21st chromosome, so 3/21 is a great day to celebrate them!) Every year, our family celebrates our wonderful daughter, who was born with Down syndrome.
  Open Link Project Happie
• Eastern Pennsylvania Down Syndrome Center Ready to connect and find support? Our welcoming parent group awaits! Chat with other parents, seek advice from advocates, and build lasting friendships, all while your kids play safely. There is no charge to attend and pizza is on us!
  Open Link Eastern Pennsylvania Down Syndrome Center
• UP21 Foundation UP21 began when a group of moms attended a conference on educating children with Down syndrome in Atlanta in 2010. After the conference we all agreed that the information we learned was extremely beneficial in educating our children. We were determined to bring the conference to St Tammany which was the impetus in forming UP21. Our 5-year goal was to raise $50,000 (the cost of the conference). Surprisingly, we were able to host the Downs Ed International Conference in 2012, in Covington, within 1 ½ years of UP21’s inception. Over 300 attendees were present for a 2-day conference with the majority of those being St. Tammany parish educators. We’ve since hosted well renowned experts who have spoken on important topics pertaining to Down syndrome to parents, educators, physicians and other professionals.
  Open Link UP21 Foundation
• Down Syndrome Coalition for El Paso Facebook Group
  Open Link Down Syndrome Coalition for El Paso
• Miami Valley Down Syndrome Association Our Mission is to provide information, resources, and support to individuals with Down syndrome, their families, and their caregivers.
  Open Link Miami Valley Down Syndrome Association
• Vermont Family Network The mission of Vermont Family Network is to empower and support all Vermont children, youth, and families, especially those with disabilities or special health needs. We do this by giving a strong start, lifting family voices, and advancing inclusive communities. Our vision is that all Vermont children and youth reach their full potential.
  Open Link Vermont Family Network
• Down Syndrome Resource Group of Western MA We have available a "First Call" team. These are parents who are available to talk to you about your concerns and provide you with information and contacts.
  If you have recently discovered that your baby has Down syndrome, if you need answers, support, reassurance, or just a conversation with someone who has been through this, please contact our "First Call Parents" by phone at 800-664-MDSC or by email at FIRSTCALL@MDSC.ORG - all correspondences are confidential.
  We have a bimonthly support group for new families. Newer families of children with Down Syndrome, siblings and grandparents are welcome to attend. We have toys for the children, a playground and snacks. Lots of information, support and love provided!
  Open Link Down Syndrome Resource Group of Western MA
• DSDN-Down Syndrome Diagnostic Network DSDN provides real time connections to parents of a child with Down syndrome through private, moderated online groups
  Open Link DSDN-Down Syndrome Diagnostic Network
• Down Syndrome Group of the Ozarks Started by a group of mothers in 2006, DSGO is an organization made up of a committed group of parents, professionals and other interested parties dedicated to creating an extensive network of support for individuals with Down syndrome and those who love and serve them in Southwest Missouri. Our Board of Directors has six committed family members and area business leaders shaping the future. We have one employee, an Executive Director.
  It is our goal to become the leading resource of Down syndrome information for new and expectant parents, students, healthcare professionals, educators and all Southwest Missouri citizens. We also are striving to bring awareness to early intervention services, promote inclusive education, highlight appropriate medical services, encourage quality employment opportunities, and advocate for community awareness and acceptance.
  Social & Support groups
  Open Link Down Syndrome Group of the Ozarks
• Michigan Alliance for Families Michigan Alliance for Families is a statewide resource to connect families of children with disabilities to resources to help improve their children’s education. We help facilitate parent involvement as a means of improving educational services and outcomes for students with disabilities.
  Michigan Alliance for Families can assist you in knowing your rights, effectively communicating your child’s needs, and advising how to help them develop and learn.
  Each Michigan Alliance staff member is a parent or family member of an individual with disabilities who has first-hand experience with the aspects of the special education system. Every staff member is trained in listening, communicating, and problem-solving.
  Families can connect directly to a Regional Parent Mentor. Parent Mentors can assist you in navigating the educational system and are knowledgeable about state and local resources.
  Parent Mentors support existing and emerging parent leaders involved with groups such as Local Interagency Coordinating Councils (LICCs), Parent Advisory Committees (PACs), the Special Education Advisory Committee (SEAC), and the Michigan Interagency Coordinating Council (MICC).
  
  Open Link Michigan Alliance for Families
• Northwest Iowa Down Syndrome Society A family support network in Northwest Iowa!
  The Northwest Iowa Down Syndrome Society is an organization dedicated to the education and support of people in NW Iowa touched by Down Syndrome and other developmental disabilities. Our goal is to support families through networking opportunities to support educational programming, our iTouch assistive device program, scholarships to attend the national convention, and support materials for families across NW Iowa.
  Open Link Northwest Iowa Down Syndrome Society
• Massachusetts Down Syndrome Congress To ensure individuals with Down syndrome in Massachusetts are valued, included, and given the opportunities to pursue fulfilling lives by providing information, networking opportunities, and advocacy for people with Down syndrome and their families, educators, health care professionals, and the community-at-large.
  Open Link Massachusetts Down Syndrome Congress
• Lincoln Land Down Syndrome Society Lincoln Land Down Syndrome Society is a support network for families residing in and around Sangamon County to promote awareness, acceptance, inclusion and education of people with Down syndrome.
  LLDSS holds regular monthly meetings in Springfield at which there are general discussions amongst group members regarding their particular life experiences and the activities in which they and their family are involved. We also present programs and provide speakers regarding subjects which are of particular interest to our members, as well as other families having a member with disabilities other than Down syndrome.
  Open Link Lincoln Land Down Syndrome Society
• New Directions New Directions is here to help families learn about Down syndrome, provide direction to resources, and offer networking opportunities with other families. For many, connecting with other parents who “know what it is like,” can help.
  Open Link New Directions
• Down Syndrome Association of Atlanta Will connect families with resources
  Open Link Down Syndrome Association of Atlanta
• Down Syndrome Association of Central Texas Social & Recreation Programs
  We provide social opportunities through our six social groups and ongoing recreation programs with a wide range of activities like line dancing, kayaking, and art.
  Education Outreach
  We offer training, webinars and conferences to educators across Central Texas to help create more inclusive learning environments
  Learn More
  Medical Outreach
  We present for hospitals, clinics, and other medical organizations to inform best practices on delivering Down syndrome diagnoses and caring for patients with Down syndrome.
  Open Link Down Syndrome Association of Central Texas
• Heart of Illinois Down Syndrome Association For years, HOIDSA has proved its commitment to improving the quality of life of persons with Down syndrome, as well as those with other disabilities, by sponsoring local workshops and conferences on topics such as health, inclusive education, and behavioral support strategies. Hundreds of parents, educators, direct care providers, and other advocates have benefited from these opportunities. The list of nationally renowned experts and speakers HOIDSA has brought to the tri-county area continues to grow, and we have the reputation of being one of the only local groups to provide these trainings to educators and others at a reasonable cost.
  Open Link Heart of Illinois Down Syndrome Association
• Down Syndrome Association of Greater Charlotte The DSA of Greater Charlotte offers a variety of program options for individuals with Ds, their families and the community-at-large in an effort educate, empower and advocate for acceptance and inclusion.
  Virtual Programming
  We offer a variety of prerecorded and live virtual learning opportunities for all ages. Opportunities include: Parent/ Guardian Webinars & Workshops, Hip Hop Dance Class, the Improvaneer Method- Online Style, and more. Check our Events Calendar for upcoming virtual (and in-person!) activities.
  First Call Program
  Support Groups
  Summer Camps
  Social Programs
  Adults with DS
  Open Link Down Syndrome Association of Greater Charlotte
• Lakes Region Community Service The Downside Up Down Syndrome Group meets every Thursday, 6 to 7 p.m., at the Pemi Youth Center, 111 Main St., Plymouth. This is a social group that meets for fun and activities, including music and games. For more information, contact Paul Freitas at 603-254-6013.
  Open Link Lakes Region Community Service
• Familias Unidas En Respuesta al Síndrome Down y Otras Alteraciones (FUERZA) Servir como fuente de apoyo, información y guía para las familias a las que se les ha diagnosticado un familiar con cualquier tipo de discapacidad del desarrollo, así como unificar a las mismas por medio de eventos especiales y servicios de consejería.
  Open Link Familias Unidas En Respuesta al Síndrome Down y Otras Alteraciones (FUERZA)
• Down Syndrome Action DS Action identifies the unmet needs of people with Down syndrome and finds creative solutions to meet those needs. As an example, DS Action determined that many children with Down syndrome do not receive the same level of recommended medical and developmental care, and that parents often find it difficult to get referrals to a variety of available intervention services.
  To meet this need, DS Action worked to establish a Down Syndrome Center, where all children with Down syndrome would have an equal opportunity of receiving recommended evaluations, referrals and intervention services. Partnering with Rady Children’s Hospital – San Diego, DS Action made this idea a reality.
  Open Link Down Syndrome Action
• Family Connection South Carolina As the voice for South Carolina parents and the state’s designated Parent Training and Information Center under the Individuals with Disabilities Education Act (IDEA), we work to ensure families are partners in all decision-making to inform federal, state, and local policies that have an impact on children and youth living with a disability or special healthcare needs.
  Open Link Family Connection South Carolina
• Down Syndrome Advocacy Project of Maine The mission of the Down syndrome Advocacy Project of Maine is to provide people with Down syndrome a vision of hope, inclusion, and independence for their future. We will do this through advocacy, community engagement, and scholarships for those seeking post-secondary education, including enrichment or vocational classes, in helping them achieve their dreams of independence.
  At DSAP, we are dedicated to providing people with Down syndrome in Maine opportunities for higher education and independence by spreading awareness and celebrating their achievements as we realize their dreams one scholarship at a time!
  Open Link Down Syndrome Advocacy Project of Maine
• Down Country Down Country utilizes Down syndrome to provide an overview of disability awareness. It is NOT an organization for only for those affected by Down syndrome, but for the ENTIRE Tri-State community that learns outside of the box. Down Country operates as an umbrella educational and positive awareness information share uniting the differently abled/exceptionally gifted community among the three states (MO, IL, IA) comprising the Tri-State area
  Open Link Down Country
• Columbus Area Down Syndrome Support Group The Columbus Area Down Syndrome Support Group (CADSSG) is a support network that informs and educates parents, self-advocates, family members, professionals, and friends of individuals with Down Syndrome. We are committed to raising awareness of Down Syndrome and promoting an inclusive culture where all people with Down syndrome are valued participants in the social, recreational, educational and economic opportunities in the communities we serve.
  Open Link Columbus Area Down Syndrome Support Group
• NC Down Syndrome Alliance To empower, connect, and support the lifespan of individuals with Down syndrome, their families, and the community through outreach, advocacy, and education in North Carolina.
  Programs include First Call, Parent Mentors and The Learning Program
  Open Link NC Down Syndrome Alliance
• Down Syndrome Association of Central California WE WANT TO PROVIDE RESOURCES FOR EVERYONE
  Whether you're a parent, family member, educator, healthcare professional, or an individual with Down Syndrome, we want to give you all the support and resources you need.
  Open Link Down Syndrome Association of Central California
• Stateline Down Syndrome Foundation In 2015, a compassionate and caring group of community members began talking about the concept of this foundation. The goal was simple: to ensure organizations that serve local people with Down syndrome, like GiGi’s Playhouse Rockford, can survive and thrive to help those in our community for years to come.
  That caring group of community members formed the Stateline Down Syndrome Foundation, a non-profit 501c3 organization whose funds are managed by the Community Foundation of Northern Illinois.
  Open Link Stateline Down Syndrome Foundation
• Eastern Idaho Down Syndrome Family Connect Our mission is to build a positive connection between individuals with Down syndrome, their families, and Eastern Idaho. We do this by providing education, advocacy, support, and resources to help facilitate inclusion within the local community.
  iCAN Bike program, Parent retreats, social gatherings and classes
  Open Link Eastern Idaho Down Syndrome Family Connect
• Down Syndrome Association of Northwest Indiana We are a longtime community organization that supports individuals with Down syndrome and their families. Our hope is to remain a NWI resource for generations to come.
  Open Link Down Syndrome Association of Northwest Indiana
• Cindy & Vic's R&R Cindy and Vic’s R & R, Inc., provides person-directed services for adults with developmental disabilities by maximizing personal potential, supporting active citizenship and building friendships for life!
  Open Link Cindy & Vic's R&R
• Buddy Cruise, Inc. Buddy Cruise Inc. is a 501c3 non-profit founded in 2008 by 2 siblings in honor of their brother who has Down syndrome. Our annual conference at sea is a unique event with something for all ages and abilities. Presenters address a wide range of disability related topics during interactive workshops. Our events are supportive of families touched by all a disabilities. Buddy Cruise sets sail every Fall.
  Mission:
  To provide educational opportunities and resources for families, while promoting awareness, advocacy, and inclusion for individuals with special needs through unique venues.
  Open Link Buddy Cruise, Inc.
• Down Syndrome Association of Greater New Orleans Members of DSAGNO work with community leaders and government agencies to educate the community toward a greater understanding of the issues facing individuals with Down syndrome. DSAGNO does this by acting as a clearinghouse for current information, advocating in our schools for inclusion programs, working with other agencies to develop programs that benefit individuals with Down syndrome and sponsoring events that will raise awareness about Down syndrome and the ability of individuals with Down syndrome.
  Open Link Down Syndrome Association of Greater New Orleans
• Down Syndrome Association of Acadiana We provide families with a support network, sharing experiences from the pre-birth of a child throughout the states of education and adult living within the community.
  Some of the organization’s programs include:
  New Parent Support
  Training
  Social Opportunities
  Outreach
  E-Newsletter
  Informational website
  Resource Lending Library
  Our primary purpose is to support and connect families of children with Down syndrome with events throughout the year that give families an opportunity to meet, mingle and gain information from each other.
  Open Link Down Syndrome Association of Acadiana
• Down Syndrome Association of the Lowcountry Established by a group of parents in the 1990s, we are a volunteer driven organization created for local families. We wish to see our children and adults with Down syndrome live fulfilling, empowered lives and strive to meet the individual needs of each family. Our mission is simply:
  To provide support to new parents
  Enrich lives through art, athletic and educational opportunities and events
  To increase community awareness of Down Syndrome
  To enhance employment opportunities for people with Down Syndrome, and
  To improve education for students with Down Syndrome.
  Open Link Down Syndrome Association of the Lowcountry
• Maine Down Syndrome Network We are a network of Individuals with Down syndrome, Families, Educators, Health-care professionals and Community Members who support each other, and share the common goal of promoting awareness, acceptance, and inclusion of Mainers with Down syndrome.
  Whether you live with Down syndrome, or you love, work with/for, provide services for someone with Down syndrome, we hope you’ll find the information on this site helpful. We are constantly striving to provide the best, most accurate, and up-to-date information for you.
  Open Link Maine Down Syndrome Network
• Down Syndrome Foundation of Florida The FOUNDATION provides people with Down syndrome and families opportunities to enhance their lives through strategic partnerships, unique programs that create 'inclusion' settings naturally, family support, and meaningful community involvement.
  Social gatherings, Camp/playdates, iCan Program
  Open Link Down Syndrome Foundation of Florida
• Gold Coast Down Syndrome Organization The Gold Coast Down Syndrome Organization impacts the lives of people with Down syndrome by raising awareness and advocating for high expectations and acceptance of individuals with Down syndrome. Since 1980, we have been helping people with Down syndrome to maximize their considerable potential and live full and meaningful lives. Our education, advocacy and support programs help families to knock down barriers that stand in the way of their children’s success. Whether you have a baby, a child in school, or an adult looking for activities, we are there for you with the most current information, constructive support, cutting-edge ideas, and all the hugs you may need. We are committed to helping every person with Down syndrome be included in their community. We are committed to helping you. Please contact us with your questions and concerns..
  Programs for babies through adult
  Open Link Gold Coast Down Syndrome Organization
• Down Syndrome Information Network of the Twin Tiers Welcome to the Down Syndrome Information Network of the Twin Tiers! This group is dedicated to education and support of those with Down Syndrome or those who have loved ones with the condition.
  We are closely affiliated with the Chemung ARC and receive support from them.
  Open Link Down Syndrome Information Network of the Twin Tiers
• Fun Coast Down Syndrome Association The mission of this organization shall be to provide support, education and resources to individuals with Down syndrome, their families, and community, in order to foster an environment in which individuals with Down syndrome are included and valued as contributing members of our society.
  Open Link Fun Coast Down Syndrome Association
• Down Syndrome Association of Northeast Indiana THE MISSION OF THE DOWN SYNDROME ASSOCIATION OF NORTHEAST INDIANA IS TO ENHANCE THE LIVES OF PEOPLE LIVING WITH DOWN SYNDROME, ADVOCATE ON THEIR BEHALF, PROVIDE INFORMATION AND SUPPORT TO FAMILIES AND PROFESSIONALS, AND PROMOTE ACCEPTANCE AND INCLUSION OF PEOPLE WITH DOWN SYNDROME IN NORTHEAST INDIANA.
  Nearly 20 years later, DSANI continues to represent people with Down syndrome and their families in the eleven counties surrounding Fort Wayne, Indiana. These counties are Allen, Lagrange, Steuben, Noble, Dekalb, Whitley, Wabash, Huntington, Wells, Kosciusko, and Adams. We provide support and resources to more than 200 member families and professionals, and maintain a database more than 1,000 supporters.
  Open Link Down Syndrome Association of Northeast Indiana
• F.R.I.E.N.D.S. – MD F.R.I.E.N.D.S., or Family Resource, Information & Education Network for Down Syndrome is a 501(c)(3) non-profit group of parents re-formed in 1999 in Frederick County, Maryland to:
  Be a support and resource group for expectant parents, new parents and extended families of babies born with Down Syndrome;
  Provide age-appropriate activities for our children and their friends;
  Advocate for community awareness and acceptance;
  Have quarterly meetings with professional speakers experienced in issues relative to Down Syndrome;
  Meet informally to share the joys and challenges of parenting.
  ** Monthly meetings are held on the second Friday of every month at 6:30pm at the Middletown United Methodist Church (MUMC) off Alt. 40 going west out of Frederick.
  Open Link F.R.I.E.N.D.S. – MD
• Lilly’s Playground The Padilla family started Lilly’s Playground in 2012. We saw a necessity to have a foundation in our native language of Spanish and English. We offer information and support for anyone influenced and inspired by someone with Down Syndrome. A prenatal diagnosis leading through adulthood will assist to enrich lives and working to network with local families and groups. We will obtain support in the areas needed.
  We believe in our loved ones with Down Syndrome, and we will advocate for their rights. Striving to make them productive members of our communities by listening to the needs of those with Down Syndrome.
  In both Spanish and English
  Open Link Lilly’s Playground
• The Arc of New Jersey The Arc of New Jersey promotes and protects the human rights of individuals with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes; and is committed to enhancing the quality of life of those individuals and their families through advocacy, empowerment, education and prevention. The Arc of New Jersey, on behalf of all individuals with intellectual and developmental disabilities, will:
  secure the opportunity for them to choose and realize their individual goals;
  take a leadership position in developing public policy, laws and regulations and serve as public spokesperson and advocate for this constituency;
  reduce the incidence and limit the consequence of intellectual and developmental disabilities through advocacy, education, research and prevention activities;
  enhance their quality of life, thereby improving the quality of life for their families; and
  develop and foster programs, services and supports, and work with Local Chapters and The Arc of the United States to carry out our goals.
  
  Open Link The Arc of New Jersey
• Down Syndrome Association of Hampton Roads Welcome to the Down Syndrome Association of Hampton Roads. We connect individuals with Down syndrome and their families to services, resources, support groups and social activities.
  Open Link Down Syndrome Association of Hampton Roads
• Down Syndrome Advocacy Foundation DSAF is dedicated to enhancing the lives of individuals with Down syndrome through advocacy and supporting inclusion within schools, communities, and the work place. A lack of consistency exists in the application of best practices for early intervention, education, and inclusion of individuals with Down syndrome in our communities, schools, and work environments. Many communities across the country provide individuals with Down syndrome access to the same educational, recreational, residential and employment opportunities available to those without Down syndrome. However, barriers still exist in some communities that prevent children, adolescents, and adults with Down syndrome from accessing the same opportunities as their typical peers.
  Open Link Down Syndrome Advocacy Foundation
• Tri-State Down Syndrome Network This is a support group organized through Facebook
  Open Link Tri-State Down Syndrome Network
• Silicon Valley Down Syndrome Association The Silicon Valley Down Syndrome Network (SVDSN) is a network of families with children born with Down syndrome. We come from all walks of life, and our common goal is to provide a community of support for individuals with Down syndrome and their families. All of SVDSN's events and activities are organized by volunteers from the group and funded by donations.
  Open Link Silicon Valley Down Syndrome Association
• New Hampshire Down Syndrome Association The New Hampshire Down Syndrome Association was formed in 1988 as a voluntary, non-profit organization of families, professionals, and others who are interested in developing and sharing knowledge and the experience of Down syndrome. The mission of the New Hampshire Down Syndrome Association is to help all people with Down syndrome live to their fullest potential and enhance their quality of life while bringing about awareness of Down syndrome to our friends and neighbors.
  Open Link New Hampshire Down Syndrome Association
• Down Syndrome Families of Las Cruces Down Syndrome Families of Las Cruces is a place where families can find love, hope, encouragement, and support. We want to provide opportunities for individuals with Down syndrome to grow, learn skills that will help them be self-sufficient, and provide a community where they can have friends and activities. We also strive to educate the community on Down syndrome and special needs.
  Open Link Down Syndrome Families of Las Cruces
• York Area Down Syndrome Association (YADSA) We provide support to families with children and adults with disabilities with a primary focus on individuals with Down syndrome.
  Open Link York Area Down Syndrome Association (YADSA)
• Down Syndrome Association of Tampa Bay- 21 Strong The Down Syndrome Association of Tampa Bay (DSATB) is an organization that aims to educate and advocate for people with Down syndrome. The organization’s mission is to change the world through education, passion, and integrity.
  School Recommendations are offered
  Open Link Down Syndrome Association of Tampa Bay- 21 Strong
• Down Syndrome Association of Tulsa Local individuals with Down syndrome actively participate in the Tulsa area community. DSAT members and their families attend both public and private schools. They participate on sports teams, dance classes, church groups and community events.
  Open Link Down Syndrome Association of Tulsa
• Northern Colorado Down Syndrome Association NCDSA exists to provide support and connection for individuals with Down syndrome and their families through advocacy, awareness, and relationships.
  Open Link Northern Colorado Down Syndrome Association
• Down Syndrome Association of Southern Maryland The Down Syndrome Association of Southern Maryland represents a group of parents and professionals in Southern Maryland who share a vision for persons with Down syndrome.
  It is a non-profit group that:
  Serves as an educational resource for the general public about Down syndrome.
  Provides a clearinghouse of information for families of those individuals with Down syndrome.
  Provides active social support for the families of those individuals with Down syndrome.
  Increase awareness and understanding of the physical, mental and emotional aspects of Down syndrome, and to expand the public’s conception of the capabilities and social value of individuals with this condition.
  Implements academic curricula to aid students with Down syndrome, and to provide need-based scholarships to students with Down syndrome.
  Encourages a public interest in and financial contributions to the study of Down syndrome, and to encourage advocacy for this condition.
  Provides need-based financial assistance for individuals with Down syndrome and their families.
  Provides, or assists in providing, medical equipment to individuals with Down syndrome who are unable to afford such equipment.
  Provides financial assistance for individuals with Down syndrome, their families, or other persons who wish to serve as advocates, who wish to attend a camp for individuals with Down syndrome or wish to attend a regional or national conference of the National Down Syndrome Society or National Down Syndrome Congress.
  Open Link Down Syndrome Association of Southern Maryland
• Down Syndrome Association of Snohomish County The Down Syndrome Association of Snohomish County was formed to provide outreach, support, and social opportunities for children and adults with Down syndrome and their families and friends. The DSASC currently hosts a monthly Moms’ Coffee and Moms’ Night Out, school break activities for all ages, a Couples’ Night Out, winter and summer potluck celebrations, and more.
  Open Link Down Syndrome Association of Snohomish County
• Berkshire County ARC Down Syndrome Family Group The Berkshire County Arc Down Syndrome Family Group is comprised of over 40 families throughout Berkshire County, working to advocate for and educate the public about Down syndrome and people with disabilities.
  Members of the group offer support to one another through natural bonds, formed from having a child with Down syndrome, and also by helping families to access supports through local and state agencies, hosting an annual Buddy Walk of the Berkshires, sponsoring speakers on all areas of Down syndrome, and by socializing at fun family events!
  The Down Syndrome Family Group is hosted by Berkshire County Arc, a large non-profit organization in Massachusetts that supports people with developmental disabilities through a variety of programs.
  Open Link Berkshire County ARC Down Syndrome Family Group
• Champaign County Down Syndrome Network Welcome to expectant parents, new parents, families new to the community, and families in the neighborhood who would like more information. We are here to assist you in any way we can. By offering opportunities to network with other parents, attending conferences, having social get-togethers and holiday parties, we hope you can find a venue that is comfortable for you. We have monthly newsletters as well as meetings to keep you informed of the upcoming events and latest information regarding Down syndrome.
  Open Link Champaign County Down Syndrome Network
• Down Syndrome Indiana Down Syndrome Indiana was formed to serve individuals with Down syndrome and their families, professionals who serve individuals with Down syndrome, and community members. Down Syndrome Indiana is not a member organization, and although we officially serve 44 counties in central Indiana, we welcome all to participate in our programming and events!
  Open Link Down Syndrome Indiana
• HelloHOPE We are a not-for-profit corporation focused on connecting families facing medical adversity with hope through stories and practical resources. Our mission and vision have been birthed from personal experience and a passion to make a practical difference in family life. We believe that adversity can bring families together and strengthen relationships. We believe that community is real and that hope is worth pursuing.
  Open Link HelloHOPE
• North Central Kansas Down Syndrome Society The North Central Kansas Down Syndrome Society (NCKDSS) is a nonprofit organization whose mission is to provide support and resources to individuals with Down Syndrome and their families.
  This mission is being fulfilled through education, research, and advocacy. The Society has grown through various activities engagements and community awareness programs. Each October, which is National Down Syndrome Awareness month, the NCKDSS sponsors a "Buddy Walk" to promote the acceptance of all people with Down Syndrome. The Buddy Walk has grown every year from 30 participants to over 900 participants.
  Open Link North Central Kansas Down Syndrome Society
• Down Syndrome Association of Orange County The Down Syndrome Association of Orange County (DSAOC) is the original Down syndrome organization for greater Orange County - serving families and our community since 1978. DSAOC’s Mission is to create a place for connection, information and hope for people with Down syndrome and their families throughout greater Orange County, to promote Down syndrome awareness through community outreach, and to offer programs, services and support that aim to empower individuals with Down syndrome to reach their full potential. Our Vision is to be a one-stop-shop for all things Down syndrome related, and to be a model organization for community collaboration and Down syndrome awareness, to change perceptions and change lives.
  Open Link Down Syndrome Association of Orange County
• Down Syndrome Connection of the Bay Area The Down Syndrome Connection is passionate and dedicated to encouraging the unlimited potential in children and adults with Down syndrome throughout the San Francisco Bay Area since 1998. We pride ourselves on developing services that are in line with our members’ needs and continuously break down barriers to success by providing resources, technology and education through our direct services.
  Open Link Down Syndrome Connection of the Bay Area
• Down Syndrome Network of Montgomery County The mission of the Down Syndrome Network of Montgomery County is to empower and support individuals with Down syndrome, their families and the community through education, information, public awareness and advocacy.
  Middle School Hangout - Virtual
  Parent/Caregiver Workshops
  Open Link Down Syndrome Network of Montgomery County
• Down Syndrome Family Connection Our vision is to bring together families
  in Bloomington, Ellettsville, Bedford,
  and surrounding areas of South Central Indiana
  in support of those with Down syndrome.
  Our mission is to promote greater acceptance and
  understanding of Down syndrome; to educate, inform, and involve all people to recognize the uniqueness and capabilities of individuals with Down syndrome and the inherent dignity of all people with developmental disabilities; and to provide education and support for communities, families and individuals living, learning, and growing with Down syndrome.
  Open Link Down Syndrome Family Connection
• 21 FrienDS 1 FrienDS is a non-profit family and support group that was started by parents with the same interests in mind. We began in 2008 with the hopes to make a difference in the lives of people with Down syndrome, as well as their families, through play dates, family activities, seminars and informational meetings.
  21 FrienDS welcomes all interested in being involved. Although the group mainly meets in the Southeastern, MA area, the families involved are from several areas of Massachusetts and Rhode Island. Families may choose to just utilize the website, while others are faithful in attending each outing monthly, and others just attend what they feel is beneficial to their family.
  Open Link 21 FrienDS
• Down Syndrome Association of Greater Charlotte PROGRAMS & SUPPORT:
  First Call Program
  Support Groups
  Summer Camps
  Social Programs
  Adults with Down Syndrome
  Community Education & Support
  Conexión de familias Hispanas
  African American and Multicultural Families Group
  Open Link Down Syndrome Association of Greater Charlotte
• Eastern Maine Down Syndrome Support Our mission is to provide resources and to create community support for those with Down Syndrome.
  Open Link Eastern Maine Down Syndrome Support
• Designer Genes Down Syndrome Group A support group for families with children with Down Syndrome in Iowa
  Open Link Designer Genes Down Syndrome Group
• Down Syndrome Association of Los Angeles For over 47 years, the Down Syndrome Association of Los Angeles (DSALA), a non-profit organization, has been a resource center supporting close to 4,000 individuals with Down
  syndrome and their families.
  Our team of dedicated staff and volunteers works tirelessly to:
  Provide members with up-to-date information about Down syndrome. We do this through our website, email blasts, support groups, workshops, and conferences.
  Advocate on behalf of individuals at both the local and national levels.
  Train medical professionals and others who work with individuals with Down syndrome to understand better the issues facing our families.
  Enrich the lives of individuals with Down syndrome by promoting opportunities to take an active part in their communities.
  Our organization is a lifeline for new parents of children with Down syndrome. When they are
  facing dramatic and unexpected changes to their lives, we connect them to other families, and
  to community organizations that provide support, as well as vital information on educational,
  medical and community services.
  Open Link Down Syndrome Association of Los Angeles
• Down Syndrome Network of Northern Nevada The Down Syndrome Network of Northern Nevada is a network of family, friends and individuals dedicated to provide information, education, and support as we raise awareness of Down syndrome in Northern Nevada.
  The Down Syndrome Network of Northern Nevada seeks to create a positive understanding of Down syndrome and envisions a community wherein all members are valued for their uniqueness, respected for their contributions, and assured the opportunity and choice to create their own path to fulfillment and success. DSNNN advocates for and with individuals with Down syndrome and their families to break down any barriers to full, productive and satisfying lives.
  Open Link Down Syndrome Network of Northern Nevada
• Families Exploring Down Syndrome Families Exploring Down Syndrome is an organization of parents, professionals, and persons concerned about the welfare of individuals with Down syndrome.
  It is the mission of Families Exploring Down Syndrome of Michigan to enhance the quality of life for all individuals with Down syndrome.
  Open Link Families Exploring Down Syndrome
• Wyoming Down Syndrome Association We are a statewide organization dedicated to supporting people with Down syndrome and their families. We organize the annual Wyoming Buddy Walk® and implement numerous projects that further our mission.
  Open Link Wyoming Down Syndrome Association
• Down Syndrome of South Central Kentucky OUR MISSION is to enhance the quality of life for individuals with Down syndrome and their families by providing support, information, education, resources, networking, and activities. WE BELIEVE that inclusion and community support are essential in helping enable persons with Down syndrome to achieve their maximum potential and lead fulfilling lives.
  Teen Clubs/Tutoring/SkillsClass/Social Gatherings
  Open Link Down Syndrome of South Central Kentucky
• Family Voices of North Dakota Family Voices of North Dakota (FVND) aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities.
  Through our national network, Family Voices provides families tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource on health care.
  Every child and youth with special needs receives family-centered care.
  Open Link Family Voices of North Dakota
• Black Down Syndrome Association The Black Down Syndrome Association is a non-profit organization dedicated to providing Black families with the resources and support they need for their loved ones with Down Syndrome.
  Founded in 2022 by two Black mothers who have Black sons with Down Syndrome, the organization works to create a culturally competent, safe space for Black families and their loved ones with Down Syndrome.
  At the Black Down Syndrome Association, we strive to create a community of support and understanding and to provide a platform for Black families to share their stories, experiences, and needs. We are committed to advocating for the rights of Black persons with Down Syndrome and to ensure that they are given the same opportunities and respect as everyone else.
  Open Link Black Down Syndrome Association
• Down Syndrome Association of Minnesota Our mission is to empower individuals and families, to create community, and to celebrate the abilities of people with Down syndrome.
  New Parent and Prenatal Diagnosis programs - Programs for babies, kids, teens & adults: Boxing, Cooking, Improv, Theatre
  Open Link Down Syndrome Association of Minnesota
• Wyckoff Family YMCA Special Needs Programming for Youth, Teen & Adults including:
  Life skills, social skills, athletics, cooking, crafts, yoga, swim and social gatherings
  Open Link Wyckoff Family YMCA
• Down Syndrome Ohana Hawaii We are families joined together to unite and support families and provide advocacy and information concerning all aspects of life for individuals with Down Syndrome. Various activities include social gatherings, new/expectant parent visits, family workshops, informational packets, family support and quarterly newsletters.
  Open Link Down Syndrome Ohana Hawaii
• Pahrump Disability Outreach Program P.D.O.P. was founded in 2009 by two parents who have special needs children. It wasn’t long after their children were diagnosed with a disability that these two parents found out that there was no local support for them here in Pahrump. There were no groups for parents or family members. There was limited information in the community regarding the disabilities.
  Both of these parents vowed to make a difference for their own families, and for all the other families living in Pahrump that have children with a disability.
  
  Open Link Pahrump Disability Outreach Program
• Down Syndrome Guild of Southeast Michigan The Down Syndrome Guild of Southeast Michigan (DSGSEMI) is a 501C-3 non-profit organization established in 1999 with an exciting history of responding to the changing needs of individuals with Down syndrome and their families.
  The DSGSEMI serves southeast Michigan, including Wayne, Oakland, Macomb, St. Clair, Livingston, Lapeer, Monroe, Washtenaw and Genesee counties. Our constituency is composed of over 250 individuals with Down syndrome of all ages, 900 family members and over 200 local professionals.
  Theatre Club/Dance Parties/New & Expecting Parent Support
  Open Link Down Syndrome Guild of Southeast Michigan
• Down Syndrome Innovations (serves KS and MO) Our life-changing support and services enable people with Down syndrome to live to their fullest potential.
  We serve as the expert resource and lead community mobilizer, sharing knowledge and creating solutions for people with Down syndrome.
  Open Link Down Syndrome Innovations (serves KS and MO)
• Designer Genes The Bismarck-Mandan “Designer Genes” name and support group was originally created by a group of local families who had young children with Down syndrome, about 20 years ago. Over the years, this network of families has offered support and information to each other in many ways.
  Our mission is to strengthen opportunities for individuals with Down syndrome and those who support them to earn, learn and belong. We see a community that embraces, respects, and supports people of all abilities, especially those with Down syndrome.
  Open Link Designer Genes
• Down Syndrome Association of Central Oklahoma To raise awareness and provide resources, as well as promote acceptance and inclusion for people with Down syndrome.
  We do this through a variety of family-oriented events, education workshops and community awareness campaigns such as:
  Down Syndrome Festival & 5k
  New Parent Visits
  Quarterly New Parent Breakfast
  Quarterly Workshops
  Parent to Parent Support Meetings/D.A.D.S
  Open Link Down Syndrome Association of Central Oklahoma
• Flower City Down Syndrome Network Our mission is to provide education, support, and opportunities to people with Down syndrome and their families. We operate in the Greater Rochester area and are a network of families, professionals, self-advocates, and friends who all share in the joys and challenges of a Down syndrome diagnosis. We know that people with Down syndrome have valuable contributions to make to their communities. We work to ensure that their full potential is met and included in every aspect of their communities. We know firsthand what you are experiencing and we are here to answer all questions about Down syndrome.
  Social groups & support groups
  Open Link Flower City Down Syndrome Network
• Bucks County Down Syndrome Interest Group (BCDSIG) A community organization dedicated to providing resources and support to families, therapists, physicians, educators and others affected by Down syndrome in Bucks County, PA.
  Open Link Bucks County Down Syndrome Interest Group (BCDSIG)
• Central New Jersey Down Syndrome Parent Advocacy Group Founded in 2000, the Central NJ DS PAG is a non-profit organization whose goal is to enhance the lives of individuals with Down syndrome, provide information and support to families and professionals and to promote awareness and acceptance of individuals with Down syndrome in our communities.
  Open Link Central New Jersey Down Syndrome Parent Advocacy Group
• Rio Grande Valley Down Syndrome Association The mission of the RGV Down Syndrome association is to build relationships, advocacy and support for individuals with down syndrome and their families in the Rio Grande Valley.
  Open Link Rio Grande Valley Down Syndrome Association
• Down Syndrome Information Alliance As you begin caring for your new baby, you might find it helpful to be in contact with another family of a young child with Down syndrome. Having experienced many of the emotions you are now facing, they might be able to offer a listening ear and kind words of support and understanding. A Parent Mentor can also help you make connections within your community to other families. They can answer many of your questions and be a great resource for you.
  We offer: Parent Mentors - Sibling Workshops - Education Workshops
  Open Link Down Syndrome Information Alliance
• The Arc North Carolina Throughout North Carolina, The Arc provides direct supports and services to people with intellectual and developmental disabilities (I/DD) that enable people to lead full rich lives in the community.
  Open Link The Arc North Carolina
• The Down Syndrome Network of Onslow & Carteret Counties If you are a new or expectant parent of a baby with Down syndrome, or are new to the Onslow & Carteret County area, we understand that by visiting this website you are searching for specific answers and resources to help in the journey ahead.
  We hope to provide you with as much information as we can. To get started, we recommend reading our facts and then turning to our Online Resources. We also want to be among the first to congratulate you on the arrival of your new baby, and invite you to contact us if you have any questions or concerns.
  We look forward to supporting you and celebrating with you along your journey.
  
  Open Link The Down Syndrome Network of Onslow & Carteret Counties
• Down Syndrome Association of Miami We host mostly complimentary age-appropriate activities for children and teens with Down syndrome designed to stimulate the mind and activate the body and allow parents an opportunity to network.
  Open Link Down Syndrome Association of Miami
• Cove Child Development At Cove Child Development we believe in treating the whole child looking beyond diagnosis. We take the time to work closely with parents and create goals that align with families needs. We believe you are the expert of your child and we are blessed to get to walk in this developmental journey with you.
  Occupational/Physical/Speech Therapy
  Open Link Cove Child Development
• Blessed By Downs BLESSED by Downs was founded by Sheri Dupre’ DeFelice in 2009. Sheri was inspired to create the organization after giving birth to an exceptional set of twins. Her son, Jayce, was born a typical child and her daughter, Olivia, was unexpectedly born with Down syndrome. DeFelice believes Olivia and others like her should be given the same opportunities as Jayce and other typical children.
  
  BLESSED By Downs is a support group for parents, families and individuals born with Down syndrome.
  Open Link Blessed By Downs
• Easterseals Hawaii Easterseals Hawaii provides exceptional, individualized, family-centered services to empower people with intellectual or developmental disabilities to achieve their goals and live independent, fulfilling lives. Easterseals Hawaii has been serving children, youth and adults with intellectual or developmental disabilities for over 75 years. We provide more than 200,000 hours of direct service annually to individuals and families across the state. All funds raised by Easterseals Hawaii remain in Hawaii and help us carry on our tradition of creating solutions and changing lives.
  Open Link Easterseals Hawaii
• Down Syndrome Association of Northern Virginia Helps families adjust to the diagnosis and/or birth of a child with Down syndrome;
  Provides individuals with Down syndrome, and their families, with educational, social and recreational programs and community events that allow families to meet, interact and learn from each other;
  Increases community awareness of the capabilities and contributions of individuals with Down syndrome; and
  Supports local organizations that serve the Down syndrome community.
  Open Link Down Syndrome Association of Northern Virginia
• Down Syndrome Association of the Emerald Coast To provide Support, Resources and Advocacy, with the aim of increasing Awareness, Acceptance, and Inclusion in Bay county and surrounding areas! DSAEC creates resources to support individuals with Down syndrome, their families and caregivers across the lifespan and hosts awareness and engagement events throughout the area including the National Buddy Walk® Program, events for 3.21 on World Down Syndrome Day, Run for 3.21, family outings, monthly events, and regional support for the community.
  Open Link Down Syndrome Association of the Emerald Coast
• Elkhart Co. Down Syndrome Support Group Welcome! The Elkhart County Down Syndrome Support Group is made up of about 50 families who have come together to support each other, educate, and increase the awareness and acceptance of the community toward those with Down Syndrome.
  We have periodic gatherings and fundraisers, and we invite anyone who has children with Down Syndrome, or who has an interest in supporting those who care for them, to join us. Click on the links above to find our calendar of events and other information about ECDSSG
  Open Link Elkhart Co. Down Syndrome Support Group
• Down Syndrome Association of Western Kentucky The Down Syndrome Association of Western Kentucky's mission is to help create a community that is
  educated, supportive and inclusive of individuals with Down syndrome.
  Open Link Down Syndrome Association of Western Kentucky
• Sharing Down Syndrome Arizona We advocate for people with Down syndrome and support families in their journey to provide the most fulfilling lives for their children. We serve people with Down syndrome across the lifespan – from birth through adulthood.
  
  Open Link Sharing Down Syndrome Arizona
• Parents of Children with Down Syndrome (PODS) of Prince George’s County The Parents of Children with Down syndrome (PODS) of Prince George’s County is a non-profit 501(c)(3) organization whose mission is to provide support and resources for individuals with Down syndrome and their families.
  
  Our PODS Support Network
  Is a parent support group for families living in Prince George’s County and surrounding areas
  Maintains a list serve to facilitate communication and information sharing
  Facilitates play groups and social activities for families
  Is dedicated to educating the community about Down syndrome
  Partners with organizations to receive donations and increase awareness about Down syndrome
  Participates in various fund raising activities for the advancement of Down syndrome
  Open Link Parents of Children with Down Syndrome (PODS) of Prince George’s County
• Parent to Parent of Georgia Connect to a regional coordinator who lives in your area and has knowledge of the special education and healthcare process. The coordinator will match you with a volunteer Support Parent who can listen and share their similar experiences. P2P Supporting Parents are trained volunteers who are matched based on your unique situation. For example, you can speak to someone whose child has the same disability, has a child in special education in your area, or has experience with a therapy or treatment your child needs.
  Parent to Parent of Georgia
• Southwest Florida PODS Angels The Goals of SW FL PODS Angels is to offer help for
  Quality of Life
  • provide support and resources
  • encourage active participation in the community
  • foster positive attitudes
  • help individuals with Down syndrome reach their full potential
  24-Hour Phone Information Line: Anyone in the community can access our phone information line at 239-872-4778 to hear information about support group meetings around the area, programs, services, events, research studies, fundraisers, volunteer opportunities and age-specific events offered for individuals with Down syndrome.
  Open Link Southwest Florida PODS Angels
• Southern Arizona Network for Down Syndrome SANDS seeks to inspire, educate and support individuals, families and communities living with Down syndrome throughout Southern Arizona.
  SANDS pursues this goal by creating an open, supportive, and collaborative network connecting individuals and families with needed resources and information.
  
  Our mission: To improve and enrich the lives of individuals with Down syndrome and to promote public awareness.
  Open Link Southern Arizona Network for Down Syndrome
• Northwest Kansas Down Syndrome Society (NWKDSS) Northwest Kansas Down Syndrome Society (NWKDSS) is a local non profit organization that strives to connect families and enhance the lives of people with Down syndrome in our communities by providing emotional, educational, and social support to them and the professionals who serve them.
  Open Link Northwest Kansas Down Syndrome Society (NWKDSS)
• Down Syndrome Network Oregon For over two decades, DSNO has been a family-led, volunteer-driven organization providing comfort and acceptance for families, friends, and individuals with Down syndrome and other intellectual disabilities. As DSNO’s numbers have grown, so has the need for an effective organization that can provide the structure to serve an expanding base of people with programs and events to connect members of our community with each other and the general public.
  Open Link Down Syndrome Network Oregon
• Upside Downs, Inc. Upside Downs, Inc. is a nonprofit, tax-exempt 501(c)(3) organization committed to helping the Down syndrome community through new parent support, recreational activities, raising awareness and advocating for a brighter future. We are a local affiliate of the National Down Syndrome Society and the National Down Syndrome Congress. Our goal is to promote the “Upside” and positive aspects of Down syndrome and further our belief that Anything is possible with Down syndrome.
  Open Link Upside Downs, Inc.
• Western North Carolina Down Syndrome Alliance The mission of the Western North Carolina Down Syndrome Alliance is to help create a community that will be educated, supportive and inclusive of individuals with Down Syndrome.
  Which 17 counties does the Western North Carolina Down Syndrome Alliance cover? Avery, Buncombe, Cherokee, Clay, Graham, Haywood, Henderson, Jackson, Macon, Madison, McDowell, Mitchell, Polk, Rutherford, Swain, Transylvania and Yancey.
  Open Link Western North Carolina Down Syndrome Alliance
• Down Syndrome Association of the Valley The Down Syndrome Association of the Valley, was formed by parents just like you who love their children deeply. We exist to support you and your newborn, be an advocate for your child as he/she grows and serve as a resource for your family to help navigate.
  We have information we can make available to you immediately by mail or you are welcome to stop in our office. We are also happy to connect you with a Down Syndrome New Parent Mentor who can meet with you wherever you choose to share knowledge and offer support. Wherever you find yourself at this moment, know we care and we want to help meet your needs.
  Social groups/fitness classes/improv/tennis/cooking!
  Open Link Down Syndrome Association of the Valley
• Down Syndrome Association of Greater St. Louis The Down Syndrome Association of Greater St. Louis was created by parents of children with Down syndrome. One of our missions is to support families with information and encouragement. For many parents, the single most helpful thing that they did after receiving the news was to talk to other parents of children with Down syndrome. If you would like to talk with someone or receive our packet of information for expectant parents, please call our office at 314.961.2504. You can also email Christy Klaus, our Family Support Coordinator, at christy@dsagsl.org. She would be happy to answer any questions or send information to you.
  Open Link Down Syndrome Association of Greater St. Louis
• Stewart Home & School Stewart Home & School believes persons with intellectual disabilities deserve every opportunity for personal growth. Our philosophy embraces an understanding of each unique individual who desires meaningful activity, success, friendships and acceptance. Every student is encouraged to develop his or her skills and talents in all areas of life.
  The mission of Stewart Home & School is the complete and total care of its students and the fulfillment of all their needs – physical, educational, social, vocational and spiritual.
  Since 1893, Stewart Home & School has provided a community where people live in a nurturing environment, and participate in programs designed to specifically meet their individual needs. Students pursue skills in self-sufficiency, academics and vocational programs in settings that stimulate self-confidence and encourage personal happiness.
  Open Link Stewart Home & School
• Otsego Academy Welcome to Otsego Academy, where students with Down syndrome and other intellectual or developmental disabilities embrace a love of learning on their path to adulthood and greater independence. Our two-year transitional program offers young adults opportunities to develop and refine independent living skills and peer-to-peer relationships in a residential setting.
  Open Link Otsego Academy
• ACDS ACDS is dedicated to providing lifetime resources of exceptional quality, innovation and inclusion for individuals with Down syndrome and other developmental disabilities and their families.
  Open Link ACDS
• Gigi's Playhouse We change lives through the consistent delivery of free educational, therapeutic-based, and career development programs for individuals with Down syndrome, their families, and the community, through a replicable playhouse model.
  With over 58+ brick-and-mortar locations across the United States and Mexico and 200 inquiries to start new locations all over the world, GiGi’s Playhouse is the ONLY network of Down Syndrome Achievement Centers. Every day, we provide FREE, life-changing therapeutic, educational, and career training programs for 30,000+ individuals of all ages.
  Open Link Gigi's Playhouse
• Ruby's Rainbow Supporting adult students with Down syndrome in achieving their dreams of higher education while spreading awareness of their capabilities and general awesomeness!! We provide college scholarships for students with Down syndrome attending post-secondary programs in the U.S., and shout their worth to the rooftops!!
  Open Link Ruby's Rainbow
• Down Syndrome of Louisville DSL is a resource for local families touched by Down syndrome from prenatal diagnosis to legacy. As the only Gold Accredited Down Syndrome Association in the country, we celebrate life by supporting, educating, and advocating to ensure each member is empowered to reach their full potential.
  Ballet/Bike Camp/Book Club/Teen Club/Social Outings/Saturday School/Social Enrichment
  Open Link Down Syndrome of Louisville
• Hearts of Joy International We exist to help children with Down syndrome reach their full potential in life by granting them access to heart surgery as well as offering resources, support and education to communities, orphanages, caregivers and parents on the inherent dignity and value of the child.
  Open Link Hearts of Joy International
• Lowcountry Down Syndrome Society Our family support group is for anyone touched by Down syndrome in the greater Savannah/ Lowcountry area. Created in 2006, the LDSS reaches families in the eight surrounding counties. Meetings every third Thursday of the month typically feature a guest speaker as well as social time for families to interact with one another. We encourage people to bring their children. The LDSS is an affiliate of the National Down Syndrome Society.
  Open Link Lowcountry Down Syndrome Society
• 21 & Change, Inc. We are committed to serving our community and forging effective relationships.
  We offer IEP Advocacy, IEP Scholarships, Assistive Technology and Public Policy Advocacy
  Open Link 21 & Change, Inc.
• LuMindidsc We are committed to connecting individuals with Down syndrome and their families to resources, expertise, education, and each other — online and in person.
  Many opportunities to participate in research studies
  Open Link LuMindidsc
• Mychal's Learning Place The goal of Mychal’s Learning Place is to continue providing a safe and loving environment that encourages independence and builds self-esteem. We believe that children and adults should be seen and heard and that we should challenge everyone to succeed. We are committed to fulfilling the needs of our community and providing a place for our youth and young adults to call home.
  Open Link Mychal's Learning Place
• Alexander's Angels Since 2007, Alexander's Angels regularly organizes panel presentations free of charge hosted by local colleges and businesses to acquaint the community with different aspects of Down syndrome. It invites representatives from other Down syndrome organizations. Panels include, among others, psychologists, researchers, educators, and self-advocates.
  Open Link Alexander's Angels
• Down Syndrome Association of Wisconsin - South Central DSAW-South Central is a chapter of the Down Syndrome Association of Wisconsin. We serve Sauk, Columbia, Iowa, Dane, Jefferson, Lafayette, Green, and Rock Counties.
  Open Link Down Syndrome Association of Wisconsin - South Central
• Down Syndrome Advocacy Project of Maine The mission of the Down syndrome Advocacy Project of Maine is to provide people with Down syndrome a vision of hope, inclusion, and independence for their future. We will do this through advocacy, community engagement, and scholarships for those seeking post-secondary education, including enrichment or vocational classes, in helping them achieve their dreams of independence.
  At DSAP, we are dedicated to providing people with Down syndrome in Maine opportunities for higher education and independence by spreading awareness and celebrating their achievements as we realize their dreams one scholarship at a time!
  Open Link Down Syndrome Advocacy Project of Maine
• SMILE on Down Syndrome S.M.I.L.E. on Down Syndrome is a 501c3 committed to providing a network of support services to meet the physical, emotional, spiritual, social, and educational needs of people of all ages with Down Syndrome, their families, and communities.
  Cooking classes, Zumba, Art classes, Social gatherings and play groups!
  Open Link SMILE on Down Syndrome
• Open Link
• Chester County Down Syndrome Interest CCDSIG plans and provides access to many activities and events for our membership, including Parents’ Nights Out, coffees, peer events, educational seminars and medical studies. We also share information regarding the many camp and program offerings that are available in our area. Financial support is available to our members for expenses for individuals with Down syndrome that may quality for reimbursement.
  Open Link Chester County Down Syndrome Interest
• Down Syndrome Society of the Susquehanna Valley We are an organization of people who want to promote Down Syndrome awareness through community events. We hope to educate the community on how individuals with Down Syndrome are important members of our society.
  
  We are made up of families that all stand for the same thing. We want to see individuals with Down Syndrome flourish into the amazing people they are. Through the help and understanding of the communities in which we all live, we can help make dreams come true. Weather it's a job, college, or just having friends. We are more alike then different!
  Open Link Down Syndrome Society of the Susquehanna Valley
• Down Syndrome Partnership of North Texas We support individuals with Down syndrome, their families and caregivers in achieving the universally desired goals of self-fulfillment, pride in one's achievements, inclusion in the community, and reaching one's fullest potential through social and educational activities.
  Open Link Down Syndrome Partnership of North Texas
• Central PA Down Syndrome Awareness Group We are committed to the success of individuals with Down syndrome. By promoting acceptance and awareness in our community we can empower individuals with Down syndrome to meet and exceed their dreams.
  Open Link Central PA Down Syndrome Awareness Group
• Chasing Dreams Chasing Dreams is an educational, physically motivating and socially encouraging Learning Center. Serving children and adults of all ages at no cost to the family. Our programs are centered around educating, not only the individual with special needs, but also their family. All of our programs concentrate on building self-confidence and empowering individuals to achieve their fullest potential.
  No individual is ever denied assistance…no matter what their disability or age.
  Open Link Chasing Dreams
• F.R.I.E.N.D.S Our MISSION is to provide resources for support and education for families, friends and care-givers of individuals with Down syndrome. We hope to help people with Down syndrome improve their quality of life through advocacy, education, and promoting a positive understanding of Down syndrome in the Wiregrass area.
  Open Link F.R.I.E.N.D.S